AE meeting Homburg, June 1-2,2013

Aniridia Europe Meeting Universitätsklinikum des Saarlandes Klinik für Augenheilkunde Homburg/Saar (Germany) 1st and 2nd of June 2013 Report This event was jointly organised by the Eye Hospital for Ophthalmology of the University Hospital Saarland, Homburg /Saar, the German Aniridia Association, AWS Aniridie-WAGR Selbsthilfe e.V. and The European Federation of Aniridia Associations, Aniridia Europe, with the …

AE – Aniridia Europe Round Table and General Assembly, June 6, 2012

ANIRIDIA EUROPE DAYJune 7th 2012Norges BlindeforbundBraille RoomSporveisgata 10Oslo, Norway 13.00 h. Round Table: Next steps to develop an Aniridia Patients' Registry in Europe Retinitis pigmentosa patients ́registries. Mr. Ole Christian Lagesen. Journalist European policy on Rare Diseases. Ms. Rosa Sánchez de Vega. President of Aniridia Europe. EURORDIS board member. The state of the art in …

Report on 2013 Make a Miracle Conference

2013 Make a Miracle Conference organized by AFI – Aniridia Foundation International and University of Virginia Charlottesville, July 31st-August 4th, 2013   REPORT From July 31st to August 4th the University of Virginia in Charlottesville hosted the 7th Conference on Aniridia organized by AFI – Aniridia Foundation International. The five-day event included many social activities …