Our President, Rosa Sánchez de Vega, represented Aniridia Europe at the 39th Meeting of the European Strabismological Association ESA), in Porto (Portugal), from 13th to 16th September 2017.
Here again we shared the table with Albinism Europe. The speeches were mostly related to the treatment of strabismus and amblyopia and had the highest scientific quality. The meeting gathered more than 500 delegates, coming from all parts of the world, which meant a good opportunity to meet professionals dealing with paedriatic low vision, including children with aniridia. Aniridia Europe disseminated information about our organisation and our genetic eye condition. We made a great effort to meet doctors and visual rehabilitation professionals from countries where there is not an association of aniridia, such as: Japan, Portugal, Serbia, Turkey, Poland, the Netherlands, Brazil and Mexico.
Katie Atkinson and James Buller, from Aniridia Network UK, represented Aniridia Europe as well as their own organization at the 43rd Annual Meeting of the European Paediatric Ophthalmological Society (EPOS) in Oxford (UK), from 31st August to 2nd September 2017.
Aniridia Europe shared an information booth with Albinism Europe, represented by Antoine Gliksohn, and was also joined by Mark Sanderson form the Albinism Fellowship (UK albinism association). Our representatives distributed Aniridia Europe brochures and flyers and had the opportunity to meet many doctors, especially from smaller countries where there is not already an aniridia association.
Although there were not any talks directly relevant to aniridia, we met professionals taking care of children with low vision, among them children with aniridia, and we could learn about a new genetic test called NGS (Next Generation Sequencing) on genes which can be connected to nystagmus, including the PAX6 gene.
The meeting was also a way to be in contact with doctors belonging to the RED ERN (Rare Eye Diseases European Reference Network).