After last year’s great success, the International Aniridia Day Committee is organizing more activities in 2018. You are invited, for example, to propose and participate in webinars on June 21 with the objective to promote a better understanding of aniridia, to exchange experiences and build new knowledge on various topics.
To celebrate the day, you are also encouraged to organise different activities and events in your country or in your social groups, like:
- a sport competition,
- dissemination of information,
- a conference in a hospital/eye clinic,
- a theatre play,
- participation in media (radio or TV),
- a press release,
- a fashion show,
- a charity sale, etc.
All ideas/actions are welcome as long as they show a realistic but positive picture of the aniridia community.
Everyone can contribute, and your success will be a whole aniridia community´s success!
For ideas, comments, suggestions or simply to share your experience please contact the International Aniridia Day Committee at: email@example.com
Aniridia Europe is pleased to share the news sent by Prof. Barbara Käsmann-Kellner of the University of Saarland, in Germany.
The Schwiete Stiftung consortium, a charity donor, will support the University of Saarland with 2.5 Million Euros. The Department of Ophthalmology will thus have the opportunity to finance a professor, a doctor in biology and laboratory equipment for 5 years, with 500,000 Euros per year, for research on aniridia and limbal stem cell insufficiency.
This is the result of the huge effort of a team formed by Prof. Dr. Berthold Seitz, Prof. Dr. Barbara Käsmann-Kellner, Dr. Lorenz Latta and Tanja Stachon MSc., that expressed their profound gratitude to the Schwiete Stiftung consortium for accepting their application and for providing staff and financial resources to the University for these objectives.
The whole aniridia community considers this to be a great opportunity to perform good research on aniridia and to make a further step in the search for a better management of this genetic condition and for a higher quality of life of the patients.