10 April 2019 | National activities, News & Events
The French National Protocol of diagnosis and care of aniridia (PNDS – protocole national de diagnostic et de soins) is now available at: https://www.has-sante.fr/portail/jcms/c_2963463/fr/aniridie It has been developed by OPHTARA – Centre of Reference for Rare Eye Diseases, under the…
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10 April 2019 | National activities, News & Events
A centre of expertise is now available for aniridia patients in Moscow, Russia, at the National Medical Research Center for Children’s Health (an autonomous institution of the Ministry of Health of the Russian Federation). In this centre, patients with aniridia,…
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25 May 2019 | National activities, News & Events
…Ireland. To get an idea of what it will be like find out about the Aniridia Network Conference 2018 including videos of the presentations. Get details and book tickets for the Aniridia Network Conference 2019 in Birmingham on 1 June…
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25 May 2019 | National activities, News & Events
On 7 to 9 June 2019 a Nordic meeting for aniridia patients and experts will be held in Hurdal near Oslo, Norway. The meeting is a result of a collaboration between Aniridia associations in Sweden, Norway and Denmark as well…
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25 May 2019 | AE, News & Events
The international Aniridia Day is a great opportunity to raise awareness on our rare condition, to share information and experiences, and to improve social inclusion and quality of life for people with aniridia. Learn more at the website and join…
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