Report on the webinar “News from the frontier”, 27th February 2021

For the Rare Disease Week 2021 Aniridia Europe organized the webinar “News from the frontier” about the Aniridia-Net COST Action and the latest news about aniridia treatment and research. The webinar started with a welcome speech by Ivana Kildsgaard, chairperson of the Swedish Aniridia Association and Aniridia Europe's Board member.Ivana reminded viewers that the main …

News from the frontier: a dialogue on Aniridia-Net COST Action to improve aniridia clinical management and promote innovative research, Saturday 27th February 2021, 11 a.m. CET

For the Rare Disease Week this year we have organised a webinar about the Aniridia-Net COST Action and the latest news in aniridia treatment and research. Our keynote speakers are dr. Neil Lagali (University of Linköping, Sweden) and dr. Claus Cursiefen (University of Cologne, Germany), interviewed by Aniridia Europe's Director Ivana Kildsgaard. You will be …

5th European Aniridia Conference 2021 – Info and call for ideas

The next European Aniridia Conference will be held online and perhaps in London too, 30 July to 1 August 2021. Make a note in your calendar now and pass this invitation on to anyone who might be interested The event is aimed at professionals, patients and parents. As in the past, it will share scientific …

Aniridia 2021 calendar available for download!

The COST Action Aniridia-Net comprises activities of advocacy and visibility, in order to create awareness about aniridia. One of these activities is the creation of a beautiful and touching 2021 calendar with the drawings created by aniridia children from all over the world. Download it here and be inspired all year long by these wonderful …

Gene.Vision website about aniridia launched in UK

Medical information about aniridia, written for both patients and doctors, is now available on a new website by Moorfields Eye Hospital.Gene.Vision contains in-depth, but easy to read, details about aniridia for patients and their families. It also lists current research and clinical trials in to treatments.Alongside is scientific content aimed at clinicians and other professionals …

The brochure “Congenital Aniridia and Related Syndromes” published in Russia

The Russian Aniridia Centre has developed and published the brochure Congenital aniridia and related syndromes. Treatment and prevention. It includes data from geneticists, ophthalmologists, neurologists, neuro-psychologists, endocrinologists, nephrologists, vaccine specialists, special needs therapists about this condition, as well as recommendations about the treatment and prevention of aniridia associated disorders.This brochure is directed to those who …

AAK-INSIGHT project on aniridia keratopathy granted by the European Union!

The application entitled ‘Aniridia – novel therapeutic tools to treat or prevent progressive corneal opacification (AAK-INSIGHT)’ was submitted by a consortium of researchers from several countries, led by Prof. Neil Lagali (Linköping University, Sweden) and Prof. Daniel Aberdam (CNRS, Biologie, Inserm-Technion, France). The AAK-INSIGHT project will last 3 years and will have a budget of …

Aniridia Europe launches the 1st Aniridia Europe Research Award on Aniridia Day, June 21 2020

Today is our day, a day to raise awareness on our rare disorder. We have to raise our voices to go out of the darkness, to draw attention to the doctors and the policy makers. Aniridia Europe celebrates this day supporting aniridia research. This is why three aniridia research projects have been awarded with the …