3rd Meeting of Aniridie-WAGR e.V., Sept. 1st – Sept 2nd 2012 in Michelau, Germany

In 2012 the 3rd meeting of Aniridie-WAGR e.V. was arranged in Michelau, Germany. Summary: Sept. the 1st 2012 First day on Sept. the 1st was planned as a day for people affected by aniridia and their families to socialize with each other, exchange information and just for having a nice day with coffee and barbeque …

AE – Aniridia Europe Constituting Meeting, 25th of September 2011

REPORT  Opening of the meeting The meeting was opened at 20.00 CET by Rosa Sánchez de Vega. She gave a brief background on the development of the European Aniridia network which led to this constituting meeting. Rosa expressed her regret that due to some administrative problems, at the time of the meeting Finland and France …

AE – Aniridia Europe Meeting, 12th June 2011

REPORT On June 12th, 2011,a European Aniridia Network meeting was held via Skype. Participating were delegates from Croatia, Finland, Germany, Italy, Norway, Spain, Sweden and the United Kingdom Constitution of the federation The delegates adopted the Final Proposition of new Statutes for Aniridia Europe. It was decided that it would be formally adopted at a …

Italian Aniridia Association – 5th national congress

Padua, 25th-27th of November 2011 - Aniridia Italiana, the Italian Aniridia Association, organized its 5th  national congress from 25th to 27th of November 2011 in Padua (Veneto Region). More than sixty people - patients, parents and relatives - attended the congress and the agenda of the meeting was characterised by the presence of many qualified …

Paris, November 19th-20th, 2011

Board and Networking meeting REPORT On November 19th and 20th, 2011, in Paris, the first Board and Networking Meeting was held, since the formal constitution of Aniridia Europe, the Federation of European aniridia associations. Participants came from Spain, Norway, Sweden, United Kingdom, Italy, Germany and Bulgaria. They represented a network of people and organizations from seventeen …

Agenda of European Aniridia Specialists Meeting 2008

  “Creation of Aniridia network of specialists strengthening of pathology expert base “ Hotel Saratoga Paseo de Mallorca, 6. Palma de Mallorca Tfno.: 0034 971 727242   Friday, 2 de may  Morning : Scientific meeting - National and European professionals only - 8.30 - 9.00 h - Receipt of documentation 9.00 – 9.15 h - Opening session, welcome message …

Mallorca – May the 2nd 2008

Highly recognised and well known geneticists and ophthalmologists from different European countries met to unify criteria about the diagnosis and treatment on Aniridia     In this meeting that took place in Mallorca, May the 2nd 2008, the Spanish” Protocol for the management of patients with Aniridia”, introduced by the Minister of Health, Bernat Soria, was presented      …

New European Federation on the rare condition aniridia established

Aniridia Europe was formally established on September 25th 2011 and has its seat in Norway.The European Federation of Aniridia Associations - Aniridia Europe - promotes research, exchange of knowledge on aniridia and empowers patients with aniridia throughout Europe. With the development of this Federation, we are removing barriers both physical and of knowledge, we are expanding our activity scope, …