Minutes from the General Assembly, July 15th, 2020

Aniridia EuropeGeneral AssemblyJuly 15th, 20207 p.m. CETTeleconference Minutes Opening of the meeting The meeting was opened at 7.00 p.m. CET and the President Mrs. Rosa Sánchez de Vega welcomed the participants. The participants briefly introduced themselves. Approval of the agenda The agenda was approved. Election of the chairperson of the meeting Ivana Kildgaard was elected …

Aniridia Europe at EPOS 2017

Katherine Atkinson and James Buller represented Aniridia Europe on a stall shared with Antoine Gliksohn and Mark Sanderson from Albinism Europe at the European Paediatric Ophthalmological Society meeting.

Katie Atkinson and James Buller, from Aniridia Network UK, represented Aniridia Europe as well as their own organization at the 43rd Annual Meeting of the European Paediatric Ophthalmological Society (EPOS) in Oxford (UK), from 31st August to 2nd September 2017. Aniridia Europe shared an information booth with Albinism Europe, represented by Antoine Gliksohn, and was …

#iOmap: autonomy is nothing without control

Group picture of Aniridia Italy youth 2017

9th National Meeting of the Italian Aniridia Association Pisa (Italy), 26th-28th of May 2017 After the meeting in Milan in 2016, where we listened to many persons and understood their different needs, Aniridia Italiana has decided to organise a meeting for adolescents and young adults to deepen our knowledge about senses, personal autonomy and independent …

The Rare Disease Day 2017

A message from Prof. Barbara Käsmann-Kellner, chair of Aniridia Europe's Scientific Committee This year the Rare Disease Day focuses on research and its slogan is: 'With research, possibilities are limitless' (see http://www.rarediseaseday.org). This is a very positive slogan indeed, and with Aniridia, we sure have seen developments within the last few years which would have …

8th national meeting of the Italian Aniridia association

“Accepting we learn” Meeting on independent living   8th national meeting of the Italian Aniridia association San Donato Milanese, Milan - Italy 18th – 20th November 2016 REPORT Outside the cold, misty weather typical of a late-November weekend in Milan provided the setting for a wonderful gathering. Indoors in the hotel lounge bar the welcome …

Minutes from the General Assembly, August 26th, 2016

General Assembly August 26th, 2016, 17.00 - 18.00 Duisburg, Germany Minutes Opening of the meeting The meeting was opened at 17.00. Approval of the agenda The agenda was approved. Election of the chairperson of the meeting Ognian Petkov was elected chairperson of the meeting. Election of the secretary of the meeting Anita de La Fuente …

Agenda and documents for General Assembly, August 26th, 2016

This is the final agenda for the General Assembly, August 26th, 2016 in Duisburg, Germany. Agenda for the General Assembly Aniridia Europe 2016 Documents: Board comments and recommendations on AE statutes proposal for revision Financial statement AE Activity Report for 2014 -2016 As we will not hand out paper-copies of the documents at the General …