3 January 2022 | National activities, News & Events
A new research project on health-related quality of life in adults with aniridia in Norway is in the starting phase, in close collaboration with Aniridia Norway and a research team at Oslo University Hospital, composed by Solrun Sigurdardottir, PhD, Charlotte von der...
3 January 2022 | National activities, News & Events
We are happy to report the news we have received from the Asociación Española de Aniridia related to the period June-December 2021. The “Mes a Mes” (month by month) programme. The Spanish Aniridia Association has broadcasted live online webinars on different topics...
3 January 2022 | National activities, News & Events
This is the activity report we have received from the German association AWS Aniridie Wagr e.V. related to the period June-December 2021 The team of AWS Aniridie Wagr e.V. has expanded in the middle of the year 2021, as the association has also grown strongly. Our...
3 January 2022 | National activities, News & Events
“The construction route known as Rallarvegen was originally designed for transporting materials during the building of the most mountainous sector of the Oslo–Bergen railway line. Today, the road is a cultural and historical monument where you will discover...
3 January 2022 | National activities, News & Events
In 2021, GÉNIRIS with AE has continued to represent the voice of patients with congenital aniridia and rare diseases of the anterior segment of the eye in ERN EYE with the beginning of the first European clinical consensus statement on congenital aniridia led by Pr...
3 January 2022 | National activities, News & Events
Increasing and easing the participation of visually impaired people to EU volunteering projects is a way to pronote inclusion and social awareness about the visual impairment. Some Aniridia Italiana APS representatives joined the training course “More...