GENIRIS and AFM TELETHON support research on aniridia

In 2018 and 2019, GENIRIS and AFM TELETHON have decided to support with 85 000 euros Pr Aberdam project on aniridia «MODELING OF HUMAN ANIRIDIA AND GENE THERAPY APPROACHES ». His group has designed an unique cellular model that recapitulates in vitro ARK. By the use of Crisp/Cas9 technology, a nonsense mutation found in aniridia …

Focus on young people and families at Aniridi Danmark’s Activity Day, November 2018

Aniridi Danmark is currently working on expanding their group of members, with a special focus on attracting young people and families with the condition. According to this goal, an Activity Day was organized in November 2018, where the activities were adapted to this purpose. It was great to meet the three families who participated, as …

Aniridia in the Bulgarian Ophthalmology Conference, November 23-25th, 2018

The conference "Novelties in Ophthalmology 2018" was held in Riu Pravets, Bulgaria, on November 23-25th,2018. The main focus of this scientific professional forum was on "Cataracts". The topic was addressed in an innovative light, in all its various aspects: diagnosis, treatment, complications, prophylaxis and rehabilitation. Cataracts and glaucoma are common in most patients with aniridia, …

Aniridia Connection! The 9th National meeting of the Italian Aniridia association, October 12th-14th, 2018

Padua, North-East of Italy. An early autumn weekend that seemed rather late summer, for the mild temperature and the blue brightness of the sky. Under the domes and the steeples of the Basilica di Sant’Antonio, Aniridia Italiana held its 9th national meeting, attended by more than 120 people, among which around 60 persons with aniridia. …

94th Congress of the Spanish Ophthalmology Society SEO, Granada 26-29 September 2018

The Spanish Association of Aniridia AEA attended this SEO Congress where they had the privilege of learning from the experts and professionals who gathered there from September 26 to 29th 2018 in Granada. It was a unique opportunity for AEA, to disseminate information about aniridia and associated pathologies, the association itself, its role and tasks …

Meeting of the the Russian Scientific Committee of the Interregional Support Center for patients with aniridia “Iris”, August 2018

The Russian Scientific Committee met in August 2018 and decided to write Clinical guidelines on congenital aniridia for the Russian Federation, as well as to start a general Register of patients with congenital aniridia in Russia. More information at: http://aniridia.ru/ru/news/2019/01/17/avgustovskie-vstrechi-nauchnogo-komiteta-mcpba-raduzhka

The 4th European Conference on Aniridia: a further step in the right direction

It was a week end full of events, meetings and opportunities to share expertise and experiences the one we spent in Paris from the 24th to the 26th of August 2018. The 4th European Conference on Aniridia, gathering more than 70 professionals and more than 130 patients, was a great opportunity to bring together experts …

Aniridia Europe and Aniridia Spain at WOC

Aniridia Europe and the Spanish Aniridia Association participated at  the World Ophthlamology Congress WOC in Barcelona, June16-19th 2018. Both organisations shared a booth, at the exhibition room, and had the possibility to talk and to provide information about Aniridia and both organisations to ophthalmolgists  coming from all parts of the world. This congress brought together …

Take part in international Aniridia Day on 21 June 2018!

After last year’s great success, the International Aniridia Day Committee is organizing more activities in 2018. You are invited, for example, to propose and participate in webinars on June 21 with the objective to promote a better understanding of aniridia, to exchange experiences and build new knowledge on various topics. To celebrate the day, you …

A €2.5 million project on aniridia funded at the University of Saarland, in Germany

Aniridia Europe is pleased to share the news sent by Prof. Barbara Käsmann-Kellner of the University of Saarland, in Germany. The Schwiete Stiftung consortium, a charity donor, will support the University of Saarland with 2.5 Million Euros. The Department of Ophthalmology will thus have the opportunity to finance a professor, a doctor in biology and …