4th European Conference on Aniridia, Paris, August 25-26th 2018

Aniridia Europe, Gêniris and OPHTARA (Reference Center for Rare Diseases in Ophthalmology, Paris) are pleased to announce the upcoming 4th European Conference on Aniridia, which will be held on 25th-26th August 2018 in Paris, France. The programme for professionals will include updates on the genetics of aniridia, on systemic deficiencies related to aniridia and on …

The Spanish Aniridia Association signs an agreement with OftaRed

In the frame of the signed agreement between the Spanish Association of Aniridia and Oftared http://www.oftared.com/, an innovative proposal was launched: those students of Nursing, Optics and Medicine Schools in Valladolid University (Spain) may apply for an annual University cooperation, according to which, they can get 3 credits of free choice in their University Curriculum. …

Prof. Bremond-Gignac´s statement on Rare Diseases Day

ShowYourRareShowYourCare #ShowYourRare As a physician-researcher who care patients affected by a rare disease, such as aniridia, rare pathologies of iris and cornea, we must make it more visible, well known and better understood. We must support associations and patients in France and Europe for better care, to prevent possible difficulties and promote researches. We must …

The Rare Disease Day 2017

A message from Prof. Barbara Käsmann-Kellner, chair of Aniridia Europe's Scientific Committee This year the Rare Disease Day focuses on research and its slogan is: 'With research, possibilities are limitless' (see http://www.rarediseaseday.org). This is a very positive slogan indeed, and with Aniridia, we sure have seen developments within the last few years which would have …

Invitation to the 2nd European Conference on Aniridia & General Assembly, 2014

Aniridia Europe, Aniridia Italiana and Fondazione Banca degli Occhi del Veneto are pleased to announce the upcoming 2nd European Conference on Aniridia, which will be held on 19th-20th September 2014 in Venice (Italy). Information about the conference, programme, faculty list and venue is available on www.aniridiaconference.org. During the same weekend, Aniridia Europe is planning to …

Report on 2013 Make a Miracle Conference

2013 Make a Miracle Conference organized by AFI – Aniridia Foundation International and University of Virginia Charlottesville, July 31st-August 4th, 2013   REPORT From July 31st to August 4th the University of Virginia in Charlottesville hosted the 7th Conference on Aniridia organized by AFI – Aniridia Foundation International. The five-day event included many social activities …

Invitation and call for grants for our Community meeting in Germany June 1-2nd 2013

View of the market in the old town of Homburg, Saarland
WE ARE BUILDING A STRONG COMMUNITY Let me tell you that we now are able to give you more details about our next COMMUNITY MEETING, to be held on June 1-2nd 2013 in Homburg/Saarbrücken (Germany), a meeting for aniridia representatives and contact people in the different European countries. Join us at our major event this …

3rd Meeting of Aniridie-WAGR e.V., Sept. 1st – Sept 2nd 2012 in Michelau, Germany

In 2012 the 3rd meeting of Aniridie-WAGR e.V. was arranged in Michelau, Germany. Summary: Sept. the 1st 2012 First day on Sept. the 1st was planned as a day for people affected by aniridia and their families to socialize with each other, exchange information and just for having a nice day with coffee and barbeque …

Italian Aniridia Association – 5th national congress

Padua, 25th-27th of November 2011 - Aniridia Italiana, the Italian Aniridia Association, organized its 5th  national congress from 25th to 27th of November 2011 in Padua (Veneto Region). More than sixty people - patients, parents and relatives - attended the congress and the agenda of the meeting was characterised by the presence of many qualified …