News
News from Ukraine
We have received a letter by Mikola Snurnikov, president of the Ukrainian aniridia association, describing the current situation in his country. It is very painful to read that aniridia patients cannot get regular examinations and access to care and that their life...
A new article on aniridia and glaucoma published in Bulgaria
Aniridia Bulgaria is pleased to share the attached file, which is a publication of the National Academy Glaucoma Foundation, Sofia, Bulgaria, 2023; the journal is "Bulgarian Glaucoma Forum", 2023, Volume 12, Issue 1. Associate Professor Anna Popova published the...
Doctors and families together on Aniridia Day in Russia
The Interregional Support center for patients with Aniridia “Iris” in the last half year has continued to support patients with aniridia providing them with free rehabilitation tools, glasses and sunglasses, as well as free examinations at the Center of Rare Eye...
Restore Vision: a European consortium developing treatments for rare eye diseases
Monday June 26, 2023: A consortium of 10 European academic, clinical and enterprise partners led by University of Galway has been formed in a special project to test new treatments for rare eye diseases. In Europe, approximately 30 million people suffer from blindness...
Aniridia Day 2023 is coming!
In 2023 again, as every year on June 21st, the international aniridia community will celebrate the Aniridia Day during the summer solstice. It will be an opportunity to meet, to share experiences, to have fun together, to reflect on what we have achieved so far and...
IWSA hosts WAGR Weekend Europe 2023
WAGR Weekend Europe 2023, organized by the International WAGR Syndrome Association, will take place from July 21 to July 23. Families from Europe and beyond will meet for this 3-day event in Overpelt, Belgium. WAGR Weekend is an opportunity for families to learn more...
“Seeing the invisible”: 3rd transnational meeting report
On February 10, 2023, the 3rd meeting of the Erasmus Plus project “SEEING THE INVISIBLE: including digitalization of students with low vision in school education” was held in Florence. “SEEING THE INVISIBLE” was conceived to provide primary and secondary teachers with...
The 7th European Aniridia Conference announced!
Aniridia Sweden together with Linköping University and Aniridia Europe are proud to announce the 7th European Aniridia Conference (EAC) that will take place in Stockholm, Sweden on May 31st – June 2nd, 2024. The scientific programme for the 2024 EAC is...
Congenital aniridia beyond black eyes: read the latest updates
Aniridia Europe is pleased to report that a cooperative international paper on aniridia has been published. It is the result of the hard work of clinicians and researchers, most of them involved in the EU COST Action Aniridia-Net, and it is aimed at improving...
Greetings from the new Board
Dear friends, Aniridia Europe's General Assembly, held online on 13th July 2022, has elected a new Board of Directors and the other organs of the federation. You can meet the new Board on the trustees' page, and read the minutes of the assembly on our website. The new...