News
Let’s go digital in Spain
Due to the pandemic situation, The Spanish Aniridia Association has organised a series of monthly webinars “Mes a mes” in Spanish on its youtube channel, about different topics related to Aniridia, such as on glaucoma, on cataracts and ocular surface, social...
From Russia with expertise
For the celebration of the International Aniridia day there has been 2 meetings in the form of a QnA session. between doctors of the Russian Aniridia Centre and Russian speaking families with Aniridia and WAGR syndrome. On 21st June the questions where answered by...
News from Ireland
Upskilling Re Charity Involvement May 2021 saw me complete “The Certificate in Charity Law Trusteeship and Governance” at the Law Society Ireland and other courses at the Wheel. Medical Professionals with involvement in Aniridia practicing in Ireland Prof Keegan, at...
Need advice on living with aniridia? Just ask Alma!
Hey, my name is Alma Akerlie and I have written a book titled «Høy måloppnåelse» (Achieving high goals). The book is about my experiences in high school. I am giving advices on how to do good in school and hopefully spreading some motivation and joy. I am also writing...
Aniridia news from France, Maghreb and Benelux: research, funding and patient care
In 2021, GÊNIRIS finance two research projects on aniridia with pediatric glaucoma (Pr Brémond-Gignac at Necker Hospital in Paris) and on artificial limbal niche (Pr Borderie at CHNO des 15 20 in Paris). To continue to help the research development in 2022, GÊNIRIS...
Aniridia-Net webinar. Managing aniridia: dos and don’ts from infancy to adulthood, Monday 21st June 2021, 18.00 CEST
A special webinar for Aniridia Day on Monday 21st June 2021, at 18.00 CEST! The speakers, Prof. Dominique Brémond Gignac (University Necker-Enfants malades Hospital, Paris, France) and Prof. Barbara Käsmann-Kellner (University of Saarland, Homburg/Saar, Germany), are...
AniridiaX: Italian superheroes with black eyes and a coloured heart
The association Aniridia Italiana APS has organised, with the collaboration of the “Omero” (Homerus) National Tactile Museum in Ancona (Marche, Italy), the exhibition: "AniridiaX: superheroes with black eyes and a coloured heart" on 19th and 20th June 2021 to...
Webinar “Breaking barriers with aniridia”, Sunday 20th June 2021, 16.30 CEST
How many barriers have you encountered in your life? At school, from childhood to the university, in finding a job and then at your workplace, in your leisure time, or when you travel, meet new people, make friends...? An important part of a visually impaired person's...
Aniridia Day 2021 is coming!!!
This year again the aniridia community will not give up celebrating the International Aniridia Day on June 21st. In the past year we have learned how to cope with all the restrictions we are still experiencing because of the pandemics, we have found new ways of...
Report on Aniridia-Net webinar: Eyes open on stem cells dynamics, signature and niche by Ruby Shalom Feuerstein and Daniel Aberdam
Hosted by Daniel Aberdam (Head of Research in INSERM – Paris), on Wednesday, May 26th 2021 Aniridia Europe in association with Aniridia-NET held the webinar "Eyes open on stem cells: dynamics, signatures and niche". The special guest of this digital event was Ruby...