Aniridia Europe gathers people all over the continent
We want to support people with aniridia in all countries and help them to share information and build useful networks in their own countries and abroad.
What is Aniridia?
Aniridia is a very rare disease and every family affected is often alone to face the diagnosis. Even nationally, there’s often only a small group of individuals. Get to know aniridia.
Aniridia Europe, the federation of European aniridia associations and representatives, has been founded to change this situation. Read our mission objectives.
As of September 2021, the federation includes 13 national associations, as well as support groups and contact persons in 20 other European countries.
Get in touch with someone in your country.
News & Events
Aniridia as a rare condition and its effect on psychological health
On 1st August 2021, in the framework of the 5th European Aniridia Conference, Dr. Galina Gening* presented the results of a study on the impact of aniridia and WAGR syndrome on the psychological states of patients and their families. In the last decades aniridia and...
The 5th European Aniridia Conference has been a great success! Recordings available
The 5th European Aniridia Conference this year had to face many challenges, that included the postponing from 2020 to 2021 and the complete transformation in an online event. In spite of all this, the conference displayed over the two days (31st July and 1st August...
Aniridia and WAGR patient brochures published in Russia
When you are dealing with a rare disease such as aniridia, there is a lot of information that you come across in a short time, and it is really difficult to understand what are the most important things that you need to know and to do, and in which priority order....