Aniridia Europe gathers people all over the continent
We want to support people with aniridia in all countries and help them to share information and build useful networks in their own countries and abroad.
What is Aniridia?
Aniridia is a very rare disease and every family affected is often alone to face the diagnosis. Even nationally, there’s often only a small group of individuals. Get to know aniridia.
Aniridia Europe, the federation of European aniridia associations and representatives, has been founded to change this situation. Read our mission objectives.
As of September 2021, the federation includes 13 national associations, as well as support groups and contact persons in 20 other European countries.
Get in touch with someone in your country.
News & Events
Congenital aniridia beyond black eyes: read the latest updates
Aniridia Europe is pleased to report that a cooperative international paper on aniridia has been published. It is the result of the hard work of clinicians and researchers, most of them involved in the EU COST Action Aniridia-Net, and it is aimed at improving...
Greetings from the new Board
Dear friends, Aniridia Europe's General Assembly, held online on 13th July 2022, has elected a new Board of Directors and the other organs of the federation. You can meet the new Board on the trustees' page, and read the minutes of the assembly on our website. The new...
A new project has started: SEEING THE INVISIBLE. Inclusive digitalization of low vision students in school education
Aniridia Europe participates on a new project on school inclusion of low vision students. Background:According to studies by the WHO (2020) and the participating entities themselves, it is estimated that there are more tan 2 million children under 15 years old with...