Aniridia Europe gathers people all over the continent
We want to support people with aniridia in all countries and help them to share information and build useful networks in their own countries and abroad.
What is Aniridia?
Aniridia is a very rare disease and every family affected is often alone to face the diagnosis. Even nationally, there’s often only a small group of individuals. Get to know aniridia.
Aniridia Europe, the federation of European aniridia associations and representatives, has been founded to change this situation. Read our mission objectives.
As of September 2021, the federation includes 13 national associations, as well as support groups and contact persons in 20 other European countries.
Get in touch with someone in your country.
News & Events
Minutes from the General Assembly, July 6th 2026
General AssemblyMinutes Date: Monday, 6 July 2026Time: 17:00 CESTVenue: Zoom 1. Opening of the meeting The Ordinary General Assembly of Aniridia Europe was opened at 17:00 CEST by Barbara Poli, President of Aniridia Europe. Barbara Poli welcomed the representatives of...
Review of EALCA available
From 17–19 April 2026, alongside the 8th European Aniridia Conference in Sofia, Bulgaria, 12 young people and emerging leaders from across Europe and beyond gathered for the European Aniridia Leadership & Collaboration Academy (EALCA). The Academy brought together...
European guidelines for aniridia published!
Aniridia Europe is very happy to announce that the Congenital aniridia: European COST action ANIRIDIA-NET guidelines for diagnosis, management and care are finally available here. This important achievement is the result of the collaboration, committment and hard work...