Aniridia Europe gathers people all over the continent
We want to support people with aniridia in all countries and help them to share information and build useful networks in their own countries and abroad.
What is Aniridia?
Aniridia is a very rare disease and every family affected is often alone to face the diagnosis. Even nationally, there’s often only a small group of individuals. Get to know aniridia.
Aniridia Europe, the federation of European aniridia associations and representatives, has been founded to change this situation. Read our mission objectives.
As of September 2021, the federation includes 13 national associations, as well as support groups and contact persons in 20 other European countries.
Get in touch with someone in your country.
News & Events
Registration for the 8th European Aniridia Conference is now open!
Aniridia Europe is pleased to announce that registration is now open for the 8th European Aniridia Conference, which will take place on 17–19 April 2026 in Sofia, Bulgaria. The conference will bring together clinicians, researchers, patient organisations and members...
In memory of Prof. Barbara Käsmann-Kellner
It is with great sadness that Aniridia Europe commemorates the passing of Prof. Dr Barbara Käsmann-Kellner. This is a tremendous loss for the entire aniridia community. Prof. Käsmann-Kellner was a tireless scientist and clinician, a pioneer in numerous discoveries,...
Pioneering gene therapy gets first funding from Spanish Aniridia Association
Asociación Española de Aniridia (AEA) has awarded its first research grant, worth €12,000, to the project entitled "Application of CRISPR in corneal cells derived from iPSCs of patients as a therapeutic approach for aniridia". It is led by Dr. Esther Pomares of the...




