Aniridia Connection! The 9th National meeting of the Italian Aniridia association, October 12th-14th, 2018

Padua, North-East of Italy. An early autumn weekend that seemed rather late summer, for the mild temperature and the blue brightness of the sky. Under the domes and the steeples of the Basilica di Sant’Antonio, Aniridia Italiana held its 9th national meeting, attended by more than 120 people, among which around 60 persons with aniridia. …

The Spanish Aniridia Association signs an agreement with OftaRed

In the frame of the signed agreement between the Spanish Association of Aniridia and Oftared http://www.oftared.com/, an innovative proposal was launched: those students of Nursing, Optics and Medicine Schools in Valladolid University (Spain) may apply for an annual University cooperation, according to which, they can get 3 credits of free choice in their University Curriculum. …

Clinical trial on KeraKlear Non-Penetrating Keratoprosthesis in Spain

A prospective, multicenter clinical trial designed to evaluate the safety and probable benefit of the keraklear non-penetrating keratoprosthesis in subjects with corneal opacity due to severe limbal stem cell deficiency associated with aniridia Summary: Sponsor and address KeraMed, Inc. 4122 East Chapman Avenue 2nd Floor, Suite 26 Orange, CA 92869Tel: 973-276-1414 Fax: 973-276-1882   Study …

Aniridie België – symposium 2018

Tijdstip: 24 februari 2018 van 9.30 u tot 13.20 u Locatie:  UZ Gent - bibliotheek Jules François - dienst oogziekten – UZ Gent Voor een routebeschrijving naar het UZ Gent: http://www.uzgent.be/nl/overuz/Bereikbaarheid/naar-de-campus/Paginas/default.aspx Programma: 9h30 – 9h40: Introductie (Aniridie België) [10 min] 9h40 – 10h40 : Prof. Dr. Leroy (UZ Gent Diensthoofd Oogheelkunde - oftalmogenetica) Genetische achtergrond/schetsing Aniridie + …

#iOmap: autonomy is nothing without control

Group picture of Aniridia Italy youth 2017
9th National Meeting of the Italian Aniridia Association Pisa (Italy), 26th-28th of May 2017 After the meeting in Milan in 2016, where we listened to many persons and understood their different needs, Aniridia Italiana has decided to organise a meeting for adolescents and young adults to deepen our knowledge about senses, personal autonomy and independent …

Aniridia Spain Research Awards

The Spanish Aniridia Association provides annual Awards to Aniridia Research in the frame of the Congress of the Spanish Ophthalmology Society. Here is the Record of Research Awards: 2005 AWARD FOR THE BEST POSTER ON CORNEA TREATMENT IN CONGENITAL ANIRIDIA “Therapeutic options in Congenital Aniridia” Dr. Fabiano Brandao, Barraquer Opthtahlmology Centre, was awarded by the …

Aniridia Spain signs an agreement with OftaRed

  In the frame of the signed agreement between the Spanish Association of Aniridia and OftaRed http://www.oftared.com/, an innovative proposal was launched: those students of Nursing, Optics and Medicine Schools in Valladolid University (Spain) may apply for an annual University cooperation, according to which, they can get 3 credits of free choice in their University …

8th national meeting of the Italian Aniridia association

“Accepting we learn” Meeting on independent living   8th national meeting of the Italian Aniridia association San Donato Milanese, Milan - Italy 18th – 20th November 2016 REPORT Outside the cold, misty weather typical of a late-November weekend in Milan provided the setting for a wonderful gathering. Indoors in the hotel lounge bar the welcome …

7th National Meeting of the Italian Aniridia association: Ten Years of Confrontation

The setting was Abano Terme (Padua) over the weekend of the 20-22 of November 2015. The atmosphere was one of continuous sharing, community and hope for the future. Families children and adults discussed, played and learnt together over a memorable eventful weekend. The conference started on Saturday with a round table entitled ‘Sport and Courage …

One vision! Summer camp 2015 – Video and Report

    One vision! Youth in Europe with Aniridia Summer camp in Bussolengo (Verona, Italy), 3rd to 15th August 2015 Report Participants Germany: 7 people Italy: 15 persons Norway: 17 people Spain: 10 people United Kingdom: 9 people Participants’ organisation during the camp Each of the four adults was appointed a specific task: Trude was …