Aniridia Europe and Aniridia-Net working together to promote knowledge on Aniridia and collaboration among scientists and with patients

Aniridia Europe is glad to announce a great new partnership with Aniridia-Net in order to promote knowledge on Aniridia and updates on its treatments. Starting from May 26th at 6:00 PM CEST, in fact, Aniridia Europe and Aniridia-net will implement a series of monthly webinar dedicated to professionals and oriented to analyze and discuss about …

Webinar: Digital rebels against distance, Saturday 24th April 2021, 11.00 a.m. CEST

Since Covid-19 spread out at global level, governments and institutions have set social distancing measures in order to contain the sanitary emergency. Starting from that moment a lot of patients around the world have lost the opportunity to meet face-to-face and to be closer to other people who lived their same condition. Luckily there were …

Report on the webinar “News from the frontier”, 27th February 2021

For the Rare Disease Week 2021 Aniridia Europe organized the webinar “News from the frontier” about the Aniridia-Net COST Action and the latest news about aniridia treatment and research. The webinar started with a welcome speech by Ivana Kildsgaard, chairperson of the Swedish Aniridia Association and Aniridia Europe's Board member.Ivana reminded viewers that the main …

News from the frontier: a dialogue on Aniridia-Net COST Action to improve aniridia clinical management and promote innovative research, Saturday 27th February 2021, 11 a.m. CET

For the Rare Disease Week this year we have organised a webinar about the Aniridia-Net COST Action and the latest news in aniridia treatment and research. Our keynote speakers are dr. Neil Lagali (University of Linköping, Sweden) and dr. Claus Cursiefen (University of Cologne, Germany), interviewed by Aniridia Europe's Director Ivana Kildsgaard. You will be …

5th European Aniridia Conference 2021 – Info and call for ideas

The next European Aniridia Conference will be held online and perhaps in London too, 30 July to 1 August 2021. Make a note in your calendar now and pass this invitation on to anyone who might be interested The event is aimed at professionals, patients and parents. As in the past, it will share scientific …

Aniridia 2021 calendar available for download!

The COST Action Aniridia-Net comprises activities of advocacy and visibility, in order to create awareness about aniridia. One of these activities is the creation of a beautiful and touching 2021 calendar with the drawings created by aniridia children from all over the world. Download it here and be inspired all year long by these wonderful …

AAK-INSIGHT project on aniridia keratopathy granted by the European Union!

The application entitled ‘Aniridia – novel therapeutic tools to treat or prevent progressive corneal opacification (AAK-INSIGHT)’ was submitted by a consortium of researchers from several countries, led by Prof. Neil Lagali (Linköping University, Sweden) and Prof. Daniel Aberdam (CNRS, Biologie, Inserm-Technion, France). The AAK-INSIGHT project will last 3 years and will have a budget of …

Minutes from the General Assembly, July 15th, 2020

Aniridia EuropeGeneral AssemblyJuly 15th, 20207 p.m. CETTeleconference Minutes Opening of the meeting The meeting was opened at 7.00 p.m. CET and the President Mrs. Rosa Sánchez de Vega welcomed the participants. The participants briefly introduced themselves. Approval of the agenda The agenda was approved. Election of the chairperson of the meeting Ivana Kildgaard was elected …

Aniridia Europe launches the 1st Aniridia Europe Research Award on Aniridia Day, June 21 2020

Today is our day, a day to raise awareness on our rare disorder. We have to raise our voices to go out of the darkness, to draw attention to the doctors and the policy makers. Aniridia Europe celebrates this day supporting aniridia research. This is why three aniridia research projects have been awarded with the …