Join us in the next international Aniridia Day on 21 June 2019!

The international Aniridia Day is a great opportunity to raise awareness on our rare condition, to share information and experiences, and to improve social inclusion and quality of life for people with aniridia. Learn more at the website and join the Aniridia Day Facebook Group Listen to the message by Pr. Dominique Brémond Gignac, chair …

Symposium on rare eye diseases and on aniridia, Venice (Italy), February 21th, 2019

A symposium focused on the rare diseases of the ocular surface and on aniridia in particular was held in Mestre (Venice), in the framework of the 23rd National Congress of the Italian Society of Cornea Transplant and Ocular Surface (S.I.T.R.A.C.). The symposium is organised in collaboration with the Veneto Eye Bank and Aniridia Italy. Programme: …

Aniridia Europe is a partner in two European projects

Erasmus+ project Looking out for a school for all: early educational inclusion for students with low vision The project is focused on early educational inclusion for visually impaired children. It involves 6 partners from 3 different European countries. It is led by RedTree, a Spanish organisation that has a long experience in working with associations …

The 4th European Conference on Aniridia: a further step in the right direction

It was a week end full of events, meetings and opportunities to share expertise and experiences the one we spent in Paris from the 24th to the 26th of August 2018. The 4th European Conference on Aniridia, gathering more than 70 professionals and more than 130 patients, was a great opportunity to bring together experts …

Aniridia Europe and Aniridia Spain at WOC

Aniridia Europe and the Spanish Aniridia Association participated at  the World Ophthlamology Congress WOC in Barcelona, June16-19th 2018. Both organisations shared a booth, at the exhibition room, and had the possibility to talk and to provide information about Aniridia and both organisations to ophthalmolgists  coming from all parts of the world. This congress brought together …

Take part in international Aniridia Day on 21 June 2018!

After last year’s great success, the International Aniridia Day Committee is organizing more activities in 2018. You are invited, for example, to propose and participate in webinars on June 21 with the objective to promote a better understanding of aniridia, to exchange experiences and build new knowledge on various topics. To celebrate the day, you …

A €2.5 million project on aniridia funded at the University of Saarland, in Germany

Aniridia Europe is pleased to share the news sent by Prof. Barbara Käsmann-Kellner of the University of Saarland, in Germany. The Schwiete Stiftung consortium, a charity donor, will support the University of Saarland with 2.5 Million Euros. The Department of Ophthalmology will thus have the opportunity to finance a professor, a doctor in biology and …

4th European Conference on Aniridia, Paris, August 25-26th 2018

Aniridia Europe, Gêniris and OPHTARA (Reference Center for Rare Diseases in Ophthalmology, Paris) are pleased to announce the upcoming 4th European Conference on Aniridia, which will be held on 25th-26th August 2018 in Paris, France. The programme for professionals will include updates on the genetics of aniridia, on systemic deficiencies related to aniridia and on …

Prof. Bremond-Gignac´s statement on Rare Diseases Day

ShowYourRareShowYourCare #ShowYourRare As a physician-researcher who care patients affected by a rare disease, such as aniridia, rare pathologies of iris and cornea, we must make it more visible, well known and better understood. We must support associations and patients in France and Europe for better care, to prevent possible difficulties and promote researches. We must …