Minutes from the General Assembly, August 26th, 2016

Agenda General Assembly August 26th, 2016, 17.00 - 18.00 Duisburg, Germany       Opening of the meeting The meeting was opened at 17.00. Approval of the agenda The agenda was approved. Election of the chairperson of the meeting Ognian Petkov was elected chairperson of the meeting. Election of the secretary of the meeting Anita …

Agenda and documents for General Assembly, August 26th, 2016

This is the final agenda for the General Assembly, August 26th, 2016 in Duisburg, Germany. Agenda for the General Assembly Aniridia Europe 2016 Documents: Board comments and recommendations on AE statutes proposal for revision Financial statement AE Activity Report for 2014 -2016 As we will not hand out paper-copies of the documents at the General …

Minutes from the General Assembly, September 21st, 2014

General Assembly, September 21st, 2014, 09.00 - 12.00 CET, Venice, Italy MINUTES     Opening of the meeting The meeting was opened at 9.20. Approval of the agenda Agenda was approved. Election of the chairman of the meeting Neven Milivojevic was elected chairman of the meeting. Election of the secretary of the meeting Barbara Poli …

Invitation to the 2nd European Conference on Aniridia & General Assembly, 2014

Aniridia Europe, Aniridia Italiana and Fondazione Banca degli Occhi del Veneto are pleased to announce the upcoming 2nd European Conference on Aniridia, which will be held on 19th-20th September 2014 in Venice (Italy). Information about the conference, programme, faculty list and venue is available on www.aniridiaconference.org. During the same weekend, Aniridia Europe is planning to …

AE meeting Homburg, June 1-2,2013

Aniridia Europe Meeting Universitätsklinikum des Saarlandes Klinik für Augenheilkunde Homburg/Saar (Germany) 1st and 2nd of June 2013 Report This event was jointly organised by the Eye Hospital for Ophthalmology of the University Hospital Saarland, Homburg /Saar, the German Aniridia Association, AWS Aniridie-WAGR Selbsthilfe e.V. and The European Federation of Aniridia Associations, Aniridia Europe, with the …

AE – Aniridia Europe Round Table and General Assembly, June 6, 2012

ANIRIDIA EUROPE DAYJune 7th 2012Norges BlindeforbundBraille RoomSporveisgata 10Oslo, Norway 13.00 h. Round Table: Next steps to develop an Aniridia Patients' Registry in Europe Retinitis pigmentosa patients ́registries. Mr. Ole Christian Lagesen. Journalist European policy on Rare Diseases. Ms. Rosa Sánchez de Vega. President of Aniridia Europe. EURORDIS board member. The state of the art in …

Report on 2013 Make a Miracle Conference

2013 Make a Miracle Conference organized by AFI – Aniridia Foundation International and University of Virginia Charlottesville, July 31st-August 4th, 2013   REPORT From July 31st to August 4th the University of Virginia in Charlottesville hosted the 7th Conference on Aniridia organized by AFI – Aniridia Foundation International. The five-day event included many social activities …