4th European Conference on Aniridia, Paris, August 25-26th 2018

Aniridia Europe, Gêniris and OPHTARA (Reference Center for Rare Diseases in Ophthalmology, Paris) are pleased to announce the upcoming 4th European Conference on Aniridia, which will be held on 25th-26th August 2018 in Paris, France. The programme for professionals will include updates on the genetics of aniridia, on systemic deficiencies related to aniridia and on …

Prof. Bremond-Gignac´s statement on Rare Diseases Day

ShowYourRareShowYourCare #ShowYourRare As a physician-researcher who care patients affected by a rare disease, such as aniridia, rare pathologies of iris and cornea, we must make it more visible, well known and better understood. We must support associations and patients in France and Europe for better care, to prevent possible difficulties and promote researches. We must …

Aniridia Europe at EPOS 2017

Katherine Atkinson and James Buller represented Aniridia Europe on a stall shared with Antoine Gliksohn and Mark Sanderson from Albinism Europe at the European Paediatric Ophthalmological Society meeting.
Katie Atkinson and James Buller, from Aniridia Network UK, represented Aniridia Europe as well as their own organization at the 43rd Annual Meeting of the European Paediatric Ophthalmological Society (EPOS) in Oxford (UK), from 31st August to 2nd September 2017. Aniridia Europe shared an information booth with Albinism Europe, represented by Antoine Gliksohn, and was …

Minutes from the General Assembly, August 26th, 2016

Agenda General Assembly August 26th, 2016, 17.00 - 18.00 Duisburg, Germany       Opening of the meeting The meeting was opened at 17.00. Approval of the agenda The agenda was approved. Election of the chairperson of the meeting Ognian Petkov was elected chairperson of the meeting. Election of the secretary of the meeting Anita …

Agenda and documents for General Assembly, August 26th, 2016

This is the final agenda for the General Assembly, August 26th, 2016 in Duisburg, Germany. Agenda for the General Assembly Aniridia Europe 2016 Documents: Board comments and recommendations on AE statutes proposal for revision Financial statement AE Activity Report for 2014 -2016 As we will not hand out paper-copies of the documents at the General …