AE meeting Homburg, June 1-2,2013

Aniridia Europe Meeting Universitätsklinikum des Saarlandes Klinik für Augenheilkunde Homburg/Saar (Germany) 1st and 2nd of June 2013 Report This event was jointly organised by the Eye Hospital for Ophthalmology of the University Hospital Saarland, Homburg /Saar, the German Aniridia Association, AWS Aniridie-WAGR Selbsthilfe e.V. and The European Federation of Aniridia Associations, Aniridia Europe, with the …

AE – Aniridia Europe Round Table and General Assembly, June 6, 2012

ANIRIDIA EUROPE DAYJune 7th 2012Norges BlindeforbundBraille RoomSporveisgata 10Oslo, Norway 13.00 h. Round Table: Next steps to develop an Aniridia Patients' Registry in Europe Retinitis pigmentosa patients ́registries. Mr. Ole Christian Lagesen. Journalist European policy on Rare Diseases. Ms. Rosa Sánchez de Vega. President of Aniridia Europe. EURORDIS board member. The state of the art in …

Report on 2013 Make a Miracle Conference

2013 Make a Miracle Conference organized by AFI – Aniridia Foundation International and University of Virginia Charlottesville, July 31st-August 4th, 2013   REPORT From July 31st to August 4th the University of Virginia in Charlottesville hosted the 7th Conference on Aniridia organized by AFI – Aniridia Foundation International. The five-day event included many social activities …

Invitation and call for grants for our Community meeting in Germany June 1-2nd 2013

View of the market in the old town of Homburg, Saarland
WE ARE BUILDING A STRONG COMMUNITY Let me tell you that we now are able to give you more details about our next COMMUNITY MEETING, to be held on June 1-2nd 2013 in Homburg/Saarbrücken (Germany), a meeting for aniridia representatives and contact people in the different European countries. Join us at our major event this …

Report on Aniridia Europe Board and Scientific Committee joint meeting

Aniridia Europe Science comitee and Board of Directors, in front on the Veneto Eye Bank in Maestre, Italy
Mestre (Venice), Italy, November 18th, 2012 Aniridia Europe Board of Directors and Scientific Committee met at the Veneto Eye Bank Foundation in Mestre, Venice, on November 18th, 2012. This Scientific Committee, currently composed by five doctors representing five different European countries, has the mission of giving advice to Aniridia Europe Board, fostering research on aniridia …

AE – Aniridia Europe Constituting Meeting, 25th of September 2011

REPORT  Opening of the meeting The meeting was opened at 20.00 CET by Rosa Sánchez de Vega. She gave a brief background on the development of the European Aniridia network which led to this constituting meeting. Rosa expressed her regret that due to some administrative problems, at the time of the meeting Finland and France …

AE – Aniridia Europe Meeting, 12th June 2011

REPORT On June 12th, 2011,a European Aniridia Network meeting was held via Skype. Participating were delegates from Croatia, Finland, Germany, Italy, Norway, Spain, Sweden and the United Kingdom Constitution of the federation The delegates adopted the Final Proposition of new Statutes for Aniridia Europe. It was decided that it would be formally adopted at a …

Paris, November 19th-20th, 2011

Board and Networking meeting REPORT On November 19th and 20th, 2011, in Paris, the first Board and Networking Meeting was held, since the formal constitution of Aniridia Europe, the Federation of European aniridia associations. Participants came from Spain, Norway, Sweden, United Kingdom, Italy, Germany and Bulgaria. They represented a network of people and organizations from seventeen …

Agenda of European Aniridia Specialists Meeting 2008

  “Creation of Aniridia network of specialists strengthening of pathology expert base “ Hotel Saratoga Paseo de Mallorca, 6. Palma de Mallorca Tfno.: 0034 971 727242   Friday, 2 de may  Morning : Scientific meeting - National and European professionals only - 8.30 - 9.00 h - Receipt of documentation 9.00 – 9.15 h - Opening session, welcome message …