News
Call for EALCA 2026 Participants
European Aniridia Leadership and Collaboration Academy (EALCA)Sofia, Bulgaria | 17–19 April 2026, Hilton Hotel Do you—or someone you love—have aniridia? Do you want to grow your leadership skills, work better with others, and make a real difference? Would you like to...
Registration for the 8th European Aniridia Conference is now open!
Aniridia Europe is pleased to announce that registration is now open for the 8th European Aniridia Conference, which will take place on 17–19 April 2026 in Sofia, Bulgaria. The conference will bring together clinicians, researchers, patient organisations and members...
In memory of Prof. Barbara Käsmann-Kellner
It is with great sadness that Aniridia Europe commemorates the passing of Prof. Dr Barbara Käsmann-Kellner. This is a tremendous loss for the entire aniridia community. Prof. Käsmann-Kellner was a tireless scientist and clinician, a pioneer in numerous discoveries,...
Pioneering gene therapy gets first funding from Spanish Aniridia Association
Asociación Española de Aniridia (AEA) has awarded its first research grant, worth €12,000, to the project entitled "Application of CRISPR in corneal cells derived from iPSCs of patients as a therapeutic approach for aniridia". It is led by Dr. Esther Pomares of the...
International Aniridia Day 2025
The 21st of June is the International Aniridia Day, that our community celebrates worldwide on the same date as the solstice - a property of how high the sun is in the sky. We chose this date because the brightness and position of the sun significantly affects the...
Aniridia’s Perspectives 2024 and the Italian narrative medicine approach: news from Italy
2024 was a special year for Aniridia Italy, full of emotions and successes. In April, the association reached the record number of registrations, including new patients, families and supporters. In May, then, thanks to the annual fundraising campaign, carried out in...
A determined and constant support to patients: news from Germany
The Executive Board met regularly in online meetings. Active exchanges between our members in our Signal exchange group, in which 135 of our 170 members currently supported each other in a safe space away from social media. We have created an overview of which...
Making us visible: a longstanding committment of Aniridia Spain
Spanish Aniridia Association annual meetingOn 22 April, Spanish families and young people living with aniridia met for the 2024 annual meeting. The event provided a supportive platform for sharing experiences and fostering connections within the aniridia community....
Wildlife and nature, a booster for a strong community: news from Lithuania
In July, the association “AniridijaLT” organized its highly anticipated annual members’ and families’ meeting, which took place in the picturesque setting in a deer park. This event brought together members of the association, their families, and supporters for a day...
A growing and active community: news from France
At the end of 2023, a new French guideline (Protocole National de Diagnostic et de Soins) was published for the Axenfeld Rieger Syndrome. It can be found here.In 2023 and 2024, as well as in the previous years, Gêniris attended many congresses (the congress of the...