News
Time to plan for the 7th European Aniridia Conference in 2024!
The next scientific European Aniridia Conference (EAC) will be held in Stockholm, Sweden, on May 31st – June 2nd, 2024. Get the latest news here and start planning your participation. The national associations are warmly invited to encourage and support the...
A new aniridia association established in Argentina!
Aniridia Europe welcomes the creation of a new association in support of aniridia patients and families in Argentina. As its president, Raúl Guillot, writes in his letter to Aniridia Europe, this association has been founded to: Establish a meeting area between people...
News from Aniridia Europe
Dear friends, one year ago I closed my greeting message on behalf of the newly elected Board with these words: "Let’s walk together with confidence towards our common goals". In the articles below you will be able to see how the national member associations have...
News from Italy: 20 years lived as ONE-Family
In 2003 a group of Italian families from Rome, Venice , Udine and Lecco decided to meet up in order to talk about their life with Aniridia. From that lunch together, everything changed not only for them, but also for the future of Aniridia’s patients in Italy and...
The 20th anniversary of Aniridia Norway at Oscarsborg Fortress Hotel
Imagine that something that started as a call for community quickly grew into a full-fledged association. And look at all that we have achieved together with others, both in Norway and around the world! In 2003, Hilde Ravnanger Hansen started the association Aniridia...
News from Spain: an active presence for the aniridia community
The Annual Meeting On 22 April, Spanish families and young people living with aniridia met recently for the 2023 annual meeting. The event provided a supportive platform for sharing experiences and fostering connections within the aniridia community. Attendees...
News from Ukraine
We have received a letter by Mikola Snurnikov, president of the Ukrainian aniridia association, describing the current situation in his country. It is very painful to read that aniridia patients cannot get regular examinations and access to care and that their life...
A new article on aniridia and glaucoma published in Bulgaria
Aniridia Bulgaria is pleased to share the attached file, which is a publication of the National Academy Glaucoma Foundation, Sofia, Bulgaria, 2023; the journal is "Bulgarian Glaucoma Forum", 2023, Volume 12, Issue 1. Associate Professor Anna Popova published the...
Doctors and families together on Aniridia Day in Russia
The Interregional Support center for patients with Aniridia “Iris” in the last half year has continued to support patients with aniridia providing them with free rehabilitation tools, glasses and sunglasses, as well as free examinations at the Center of Rare Eye...
Restore Vision: a European consortium developing treatments for rare eye diseases
Monday June 26, 2023: A consortium of 10 European academic, clinical and enterprise partners led by University of Galway has been formed in a special project to test new treatments for rare eye diseases. In Europe, approximately 30 million people suffer from blindness...