News
Wildlife and nature, a booster for a strong community: news from Lithuania
In July, the association “AniridijaLT” organized its highly anticipated annual members’ and families’ meeting, which took place in the picturesque setting in a deer park. This event brought together members of the association, their families, and supporters for a day...
A growing and active community: news from France
At the end of 2023, a new French guideline (Protocole National de Diagnostic et de Soins) was published for the Axenfeld Rieger Syndrome. It can be found here.In 2023 and 2024, as well as in the previous years, Gêniris attended many congresses (the congress of the...
Exciting Nordic meeting in sunny Stockholm!
The Nordic Aniridia Meeting 2024 was held in Stockholm from May 31 to June 2, 2024, gathering 27 enthusiastic participants from Sweden, Norway, and Finland. The meeting ran parallel to the European Aniridia Conference (EAC) 2024 and provided a great opportunity for...
Spreading knowledge on aniridia in Russia: the latest news
From October 1st to October 30th, as part of the project "Help me see the world!", 7 expeditions were made by a pool of doctors (an ophthalmologist, a neurologist, a geneticist, a low vision specialist, and a psychologist) in different regions of Russia (Alaty, Nizhny...
Minutes from the General Assembly, July 8th, 2024
GENERAL ASSEMBLY July 8th, 2024, 5 p.m. CEST, Teleconference Minutes 1. Commencement of the General Assembly The meeting was opened at 17.00 CEST by Barbara Poli. There were the following participants: Name CountryDidier Colle BelgiumOgnian Petkov BulgariaElena...
Aniridia Europe participated to a webinar organised by the Dr Shroff’s Charity Eye Hospital of New Delhi, India
On 19th July 2024 Aniridia Europe was invited to participate to the webinar “Hope for Rare Eye Diseases” organised by the team of the SCEH (Dr Shroff's Charity Eye Hospital) in New Delhi, India, as a CURED initiative. CURED is the Centre for Unknown and Rare Eye...
Recordings of the 7th European Aniridia Conference 2024 available!
The aniridia community enjoyed a great week end in Stockholm (Sweden) from Friday 31 May to Sunday 2 June 2024, when the 7th European Aniridia Conference took place. Once more, researchers and clinicians presented their latest studies on aniridia to the large audience...
Multiplier events of the Erasmus+ project “Together for inclusion” held in Stockholm on 31 May and 1 June 2024
From Friday 31 May to Sunday 2 June 2024 it was a very busy weekend for the aniridia community in Stockholm. In fact, the 7th European Aniridia Conference and its satellite meetings gathered 180 persons, from researchers to clinicians, from patient representatives to...
Summary of the European Aniridia Conference available!
The aniridia community enjoyed a great week end in Stockholm (Sweden) from Friday 31 May to Sunday 2 June 2024, when the 7th European Aniridia Conference took place. Once more, researchers and clinicians presented their latest studies on aniridia to the large audience...
Nomination for director of Aniridia Europe
Aniridia Europe is recruiting volunteers to be directors, to lead and carry out its activities for the next 2 years. Fill in the form linked at the bottom of this page by the end of 7 June to apply for one of the 9 postions. It’s an important and exciting role where...