News
Promoting associationism among young people with the Erasmus+ “Together for inclusion” project: report on the 1st transnational meeting
The 1st meeting of the Erasmus Plus project “TOGETHER FOR INCLUSION: Young people with low vision for active participation awareness and associationism around the world” was held on 5 May 2023 in Rome (Italy).The project arises from the joint work of a wide European...
“Seeing the invisible”: 3rd transnational meeting report
On February 10, 2023, the 3rd meeting of the Erasmus Plus project “SEEING THE INVISIBLE: including digitalization of students with low vision in school education” was held in Florence. “SEEING THE INVISIBLE” was conceived to provide primary and secondary teachers with...
The 7th European Aniridia Conference announced!
Aniridia Sweden together with Linköping University and Aniridia Europe are proud to announce the 7th European Aniridia Conference (EAC) that will take place in Stockholm, Sweden on May 31st – June 2nd, 2024. The scientific programme for the 2024 EAC is...
Congenital aniridia beyond black eyes: read the latest updates
Aniridia Europe is pleased to report that a cooperative international paper on aniridia has been published. It is the result of the hard work of clinicians and researchers, most of them involved in the EU COST Action Aniridia-Net, and it is aimed at improving...
Greetings from the new Board
Dear friends, Aniridia Europe's General Assembly, held online on 13th July 2022, has elected a new Board of Directors and the other organs of the federation. You can meet the new Board on the trustees' page, and read the minutes of the assembly on our website. The new...
A new project has started: SEEING THE INVISIBLE. Inclusive digitalization of low vision students in school education
Aniridia Europe participates on a new project on school inclusion of low vision students. Background:According to studies by the WHO (2020) and the participating entities themselves, it is estimated that there are more tan 2 million children under 15 years old with...
EAC 6 recordings available!
All the recordings of the 6th European Aniridia Conference are now available for scientists and patients in the dedicated website. Click here to discover them. You will be able to get the most updated and cutting edge information on aniridia research and treatment in...
Aniridia Europe community meeting: a report
The Aniridia Europe Community Meeting took place on 3rd June 2022 in San Juan de Alicante, Spain, in the framework the 6th European Aniridia Conference. The meeting was attended by a large majority of Aniridia Europe's members, and by the welcomed guests of ANA -...
Gêniris, a patient organisation in France and worldwide
Founded 17 years ago, Gêniris is a well established patient organisation active in many healthcare and research institutions. The representative Marjorie Poeydomenge described its activities during the Aniridia Europe Community Meeting in Alicante, on the 3rd of June...
Aniridia Spain from pioneering to cutting edge
The Spanish Aniridia association is the first ever founded association for aniridia patients and their families, and now, after 26 years, it continues in providing support to its members and in promoting knowledge and research about aniridia, as it has done in...