News
A new project has started: SEEING THE INVISIBLE. Inclusive digitalization of low vision students in school education
Aniridia Europe participates on a new project on school inclusion of low vision students. Background:According to studies by the WHO (2020) and the participating entities themselves, it is estimated that there are more tan 2 million children under 15 years old with...
EAC 6 recordings available!
All the recordings of the 6th European Aniridia Conference are now available for scientists and patients in the dedicated website. Click here to discover them. You will be able to get the most updated and cutting edge information on aniridia research and treatment in...
Aniridia Europe community meeting: a report
The Aniridia Europe Community Meeting took place on 3rd June 2022 in San Juan de Alicante, Spain, in the framework the 6th European Aniridia Conference. The meeting was attended by a large majority of Aniridia Europe's members, and by the welcomed guests of ANA -...
Gêniris, a patient organisation in France and worldwide
Founded 17 years ago, Gêniris is a well established patient organisation active in many healthcare and research institutions. The representative Marjorie Poeydomenge described its activities during the Aniridia Europe Community Meeting in Alicante, on the 3rd of June...
Aniridia Spain from pioneering to cutting edge
The Spanish Aniridia association is the first ever founded association for aniridia patients and their families, and now, after 26 years, it continues in providing support to its members and in promoting knowledge and research about aniridia, as it has done in...
Aniridia’s Education Corner: from Italy comes the first eLearning area on Aniridia in the world
2022 was a year of great importance for the Aniridia Italy association. First of all, in June, finally and after four years, a national meeting was held in person. In fact, the 2020 meeting was held completely digitally and in order not to lose the habit, this year's...
News from Bulgaria
The Bulgarian aniridia association was founded ten years ago. During the Aniridia Europe Community Meeting in Alicante, on 3rd of June 2022, its President, Elena Tsoneva, described its activities, plans for future and challenges, that you can read here.
A new aniridia association founded in Romania
During the Aniridia Europe Community Meeting in Alicante, on 3rd of June 2022, the representative Oana Simerea introduced the recently founded Romanian aniridia association. You can find her presentation here.
Minutes from the General Assembly, July 13th, 2022
General Assembly minutes
News from Aniridia Sweden
A report by Neven Milivojevic, representative of Aniridia Sverige. In 2021 the Swedish aniridia association, Aniridia Sweden, had 66 members. The association is a member of the Swedish Association of the Visually Impaired as well as of the Swedish National Association...