News
Minutes from the General Assembly, July 13th, 2022
General Assembly minutes
News from Aniridia Sweden
A report by Neven Milivojevic, representative of Aniridia Sverige. In 2021 the Swedish aniridia association, Aniridia Sweden, had 66 members. The association is a member of the Swedish Association of the Visually Impaired as well as of the Swedish National Association...
An introduction to the German Aniridia association
We gladly publish the speech of Denice Toews, president of AWS Aniridie-WAGR e.V., at the Aniridia Europe Community Meeting in Alicante, on 3rd of June 2022. My name is Denice and I’m 46 years old. I am a mother of 4 wonderful children. One of them has a very rare...
6th European Aniridia Conference: session on WAGR spectrum
Aniridia Europe is pleased to publish the lay summary of the session on WAGR spectrum held at the 6th European Aniridia Conference, on 3, 4 & 5 June 2022, in San Juan de Alicante, Spain. The summary was prepared by Kelly Trout, chaiperson of the International Wagr...
Nominations open for directors of Aniridia Europe
The Nominating Committee informs that: We are recruiting volunteers to lead and carry out our activities. Would you like to be involved? Here are details of how you can be. Between 4 and 9 people are needed to form the Aniridia Europe Board of Directors. Together the...
Webinar: Regulatory Framework on Orphan Medicinal Products for Rare Diseases, May 20th, 2022, at 13.00 CEST
Aniridia-Net and Aniridia Europe are happy to announce this new webinar which will take place on May 20th at 1PM CEST and will talk about orphan medicinal products, recommended to an audience of professionals working in the field of aniridia and the other rare...
Aniridia Europe Webinar: The digital therapeutics value
On April 26th 2022, at 18.00 CEST, Aniridia Europe will present a live webinar hosted by Galina Gening with the presence of Kasperi Kankare to talk about the the measurement of intraocular pressure in patients with congenital aniridia at home. A few years ago, a...
Canary Island holiday raffle, fundraising for the European Aniridia Conference
Help us to finance the 6th European Aniridia Conference by entering a raffle to win 7 days / 6 nights in Fuerteventura with all-inclusive at Hotel Taimar – accessible and inclusive hotel. Do you know the Canary Islands, its incredible…
Overview of ANA Scientific Symposium: PAX6, aniridia, and beyond is now available
We are pleased to announce that ANA (Aniridia North America) has published on its website the overview of themes of the 2021 ANA Symposium: PAX6, Aniridia, and Beyond. The meeting was held on November 4-6 on the campus of the University of Virginia and was attended by...
The 6th European Aniridia Conference announced!
The Spanish Aniridia Association, with the collaboration of Aniridia Europe, Cost Action and Vissum-Miranza Ophthalmology Clinic, invites you to attend the 6th European Aniridia Conference, that will take place on June 3-5th 2022 in San Juan de Alicante, Spain. A...