Looking out for the aniridia community
In this section, we publish news, events and invitations.
Continue readingJoin us in the next international Aniridia Day on 21 June 2019!
The next big event in the UK will be a chance to hear from, and ask questions to people interested in and affected by aniridia. There will be presentations about aniridia and related subjects from doctors and patients as well as the charity's annual general meeting. Lunch and a crèche will be provided. Everyone is …
Continue reading "Aniridia Network Conference, 1 June 2019 in Birmingham, UK"
On 7 to 9 June 2019 a Nordic meeting for aniridia patients and experts will be held in Hurdal near Oslo, Norway. The meeting is a result of a collaboration between Aniridia associations in Sweden, Norway and Denmark as well as Linköpings University Hospital in Sweden. At the meeting, a number of experts and practitioners …
Continue reading "Nordic aniridia conference, 7-9 June 2019 in Hurdal near Oslo, Norway"
Continue reading "French guidelines for congenital aniridia published, April 2019"
Continue reading "Aniridia Centre opened in Moscow, Russia, February 2019"
Erasmus+ project Looking out for a school for all: early educational inclusion for students with low vision The project is focused on early educational inclusion for visually impaired children. It involves 6 partners from 3 different European countries. It is led by RedTree, a Spanish organisation that has a long experience in working with associations …
Continue reading "Aniridia Europe is a partner in two European projects"
In 2018 and 2019, GENIRIS and AFM TELETHON have decided to support with 85 000 euros Pr Aberdam project on aniridia «MODELING OF HUMAN ANIRIDIA AND GENE THERAPY APPROACHES ». His group has designed an unique cellular model that recapitulates in vitro ARK. By the use of Crisp/Cas9 technology, a nonsense mutation found in aniridia …
Continue reading "GENIRIS and AFM TELETHON support research on aniridia"
Aniridi Danmark is currently working on expanding their group of members, with a special focus on attracting young people and families with the condition. According to this goal, an Activity Day was organized in November 2018, where the activities were adapted to this purpose. It was great to meet the three families who participated, as …
The conference "Novelties in Ophthalmology 2018" was held in Riu Pravets, Bulgaria, on November 23-25th,2018. The main focus of this scientific professional forum was on "Cataracts". The topic was addressed in an innovative light, in all its various aspects: diagnosis, treatment, complications, prophylaxis and rehabilitation. Cataracts and glaucoma are common in most patients with aniridia, …
Continue reading "Aniridia in the Bulgarian Ophthalmology Conference, November 23-25th, 2018"
Padua, North-East of Italy. An early autumn weekend that seemed rather late summer, for the mild temperature and the blue brightness of the sky. Under the domes and the steeples of the Basilica di Sant’Antonio, Aniridia Italiana held its 9th national meeting, attended by more than 120 people, among which around 60 persons with aniridia. …