News & Events

It was a week end full of events, meetings and opportunities to share expertise and experiences the one we spent in Paris from the 24th to the 26th of August 2018. The 4th European Conference on Aniridia, gathering more than 70 professionals and more than 130 patients, was a great opportunity to bring together experts …

Continue reading "The 4th European Conference on Aniridia: a further step in the right direction"

Aniridia Europe and the Spanish Aniridia Association participated at  the World Ophthlamology Congress WOC in Barcelona, June16-19th 2018. Both organisations shared a booth, at the exhibition room, and had the possibility to talk and to provide information about Aniridia and both organisations to ophthalmolgists  coming from all parts of the world. This congress brought together …

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After last year’s great success, the International Aniridia Day Committee is organizing more activities in 2018. You are invited, for example, to propose and participate in webinars on June 21 with the objective to promote a better understanding of aniridia, to exchange experiences and build new knowledge on various topics. To celebrate the day, you …

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Aniridia Europe is pleased to share the news sent by Prof. Barbara Käsmann-Kellner of the University of Saarland, in Germany. The Schwiete Stiftung consortium, a charity donor, will support the University of Saarland with 2.5 Million Euros. The Department of Ophthalmology will thus have the opportunity to finance a professor, a doctor in biology and …

Continue reading "A €2.5 million project on aniridia funded at the University of Saarland, in Germany"

Aniridia Europe, Gêniris and OPHTARA (Reference Center for Rare Diseases in Ophthalmology, Paris) are pleased to announce the upcoming 4th European Conference on Aniridia, which will be held on 25th-26th August 2018 in Paris, France. The programme for professionals will include updates on the genetics of aniridia, on systemic deficiencies related to aniridia and on …

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ShowYourRareShowYourCare #ShowYourRare As a physician-researcher who care patients affected by a rare disease, such as aniridia, rare pathologies of iris and cornea, we must make it more visible, well known and better understood. We must support associations and patients in France and Europe for better care, to prevent possible difficulties and promote researches. We must …

Continue reading "Prof. Bremond-Gignac´s statement on Rare Diseases Day"