Aniridia Connection! The 9th National meeting of the Italian Aniridia association, October 12th-14th, 2018

Padua, North-East of Italy. An early autumn weekend that seemed rather late summer, for the mild temperature and the blue brightness of the sky. Under the domes and the steeples of the Basilica di Sant’Antonio, Aniridia Italiana held its 9th national meeting, attended by more than 120 people, among which around 60 persons with aniridia. …

The 4th European Conference on Aniridia: a further step in the right direction

It was a week end full of events, meetings and opportunities to share expertise and experiences the one we spent in Paris from the 24th to the 26th of August 2018. The 4th European Conference on Aniridia, gathering more than 70 professionals and more than 130 patients, was a great opportunity to bring together experts …

Aniridia Europe and Aniridia Spain at WOC

Aniridia Europe and the Spanish Aniridia Association participated at  the World Ophthlamology Congress WOC in Barcelona, June16-19th 2018. Both organisations shared a booth, at the exhibition room, and had the possibility to talk and to provide information about Aniridia and both organisations to ophthalmolgists  coming from all parts of the world. This congress brought together …

Take part in international Aniridia Day on 21 June 2018!

After last year’s great success, the International Aniridia Day Committee is organizing more activities in 2018. You are invited, for example, to propose and participate in webinars on June 21 with the objective to promote a better understanding of aniridia, to exchange experiences and build new knowledge on various topics. To celebrate the day, you …

A €2.5 million project on aniridia funded at the University of Saarland, in Germany

Aniridia Europe is pleased to share the news sent by Prof. Barbara Käsmann-Kellner of the University of Saarland, in Germany. The Schwiete Stiftung consortium, a charity donor, will support the University of Saarland with 2.5 Million Euros. The Department of Ophthalmology will thus have the opportunity to finance a professor, a doctor in biology and …

4th European Conference on Aniridia, Paris, August 25-26th 2018

Aniridia Europe, Gêniris and OPHTARA (Reference Center for Rare Diseases in Ophthalmology, Paris) are pleased to announce the upcoming 4th European Conference on Aniridia, which will be held on 25th-26th August 2018 in Paris, France. The programme for professionals will include updates on the genetics of aniridia, on systemic deficiencies related to aniridia and on …

The Spanish Aniridia Association signs an agreement with OftaRed

In the frame of the signed agreement between the Spanish Association of Aniridia and Oftared http://www.oftared.com/, an innovative proposal was launched: those students of Nursing, Optics and Medicine Schools in Valladolid University (Spain) may apply for an annual University cooperation, according to which, they can get 3 credits of free choice in their University Curriculum. …

Prof. Bremond-Gignac´s statement on Rare Diseases Day

ShowYourRareShowYourCare #ShowYourRare As a physician-researcher who care patients affected by a rare disease, such as aniridia, rare pathologies of iris and cornea, we must make it more visible, well known and better understood. We must support associations and patients in France and Europe for better care, to prevent possible difficulties and promote researches. We must …

The Rare Disease Day 2017

A message from Prof. Barbara Käsmann-Kellner, chair of Aniridia Europe's Scientific Committee This year the Rare Disease Day focuses on research and its slogan is: 'With research, possibilities are limitless' (see http://www.rarediseaseday.org). This is a very positive slogan indeed, and with Aniridia, we sure have seen developments within the last few years which would have …