The Nominating Committee informs that:

We are recruiting volunteers to lead and carry out our activities. Would you like to be involved? Here are details of how you can be.

Between 4 and 9 people are needed to form the Aniridia Europe Board of Directors. Together the directors discuss issues and take decisions about what the organisation does. Then they also often do the tasks agreed, for example: liaising with doctors, running events and fundraising.
These activities take place mainly in English and online, so being comfortable with both of these is important.
Directors need good critical thinking, administration and communications skills. As volunteers they need to have time, enthusiasm and dedication to the objectives of Aniridia Europe.
If this sounds like and interests you and you would like to discuss or find out more about the expectations, browse our website and contact

The tenures of all the current directors will end in July. To continue as directors they also need to follow the process below. So there are 9 vacancies available.

New directors will be elected at the upcoming Aniridia Europe General Assembly. The voters will be one representative from each of the aniridia associations that are full members of Aniridia Europe. The director posts will last for 2 years — until the next General Assembly in 2024. The meeting will also appoint directors to be President, Vice President, Treasurer and Secretary.

Candidates for being directors must be part of and nominated by one of Aniridia Europe’s full member aniridia associations. Each association may only nominate one person from among its individual members.

The Nominating Committee will interview candidates for about 30 minutes. It will then make recommendations to the General Assembly on who it believes are the suitable and best candidates to be board members, and specifically to take the President, Vice President, Treasurer and Secretary roles. If there are candidates that are rejected or not (fully) considered by the Nominating Committee their names and status will be explained to the voters.

The Nominating Committee consists of volunteers, also from European aniridia associations and appointed by the General Assembly. Currently this is Corrado Teofili from Italy (Chairperson), James Buller from the UK, Lucia Mosquera from Spain and Sølvi Ørstenvik from Norway. Irma Byle stepped down from the committee. They will make decisions by majority vote.

To become a director of Aniridia Europe from 2022 to 2024 these are the steps and timeline

  • 30 June: Deadline to submit a nomination (see below for details)
  • 5 July: Deadline to be interviewed by the Nominating Committee
  • 8 July: Conclusions of the Nominating Committee published on the Aniridia Europe website and publicised on the community email list and social media channels.
    Member Associations will then decide how to cast their votes on the candidates
  • 13 July: General Assembly

How to submit a nomination
By the end of 30 June
1. Send an email to and CC the address of your aniridia association, with the subject “Aniridia Europe Director Nomination” and the the following details:
– Full name
– Phone number, including country code
– Aniridia Association you are part of
– Declaration of none or any potential conflicts of interest (see below).
– Confirm that you: “are over 18 years old and have the skills, time and enthusiasm and commitment to act as a director of Aniridia Europe in the year 2022-2024.”
– Dates and times between 1 and 5 July when you can attend a 30 minute interview.
2. Get another person from the committee of your aniridia association to send a response to your email, to confirming that you “are suitable to be a director of an organisation, are a member of the association and its nominee candidate to be an Aniridia Europe director 2022-2024.”

Conflicts of interest
Potential conflicts of interest include, but are not limited to:
Being on the committee of a national aniridia association
Having a family member who is also a candidate for the Aniridia Europe Board or on the committee of a national aniridia association
Working on aniridia research that could seek funding from Aniridia Europe
These situations will not prevent you from being a director but should be declared so the Nominating Committee can consider them.