94th Congress of the Spanish Ophthalmology Society SEO, Granada 26-29 September 2018

The Spanish Association of Aniridia AEA attended this SEO Congress where they had the privilege of learning from the experts and professionals who gathered there from September 26 to 29th 2018 in Granada. It was a unique opportunity for AEA, to disseminate information about aniridia and associated pathologies, the association itself, its role and tasks …

Meeting of the the Russian Scientific Committee of the Interregional Support Center for patients with aniridia “Iris”, August 2018

The Russian Scientific Committee met in August 2018 and decided to write Clinical guidelines on congenital aniridia for the Russian Federation, as well as to start a general Register of patients with congenital aniridia in Russia. More information at: http://aniridia.ru/ru/news/2019/01/17/avgustovskie-vstrechi-nauchnogo-komiteta-mcpba-raduzhka

The Spanish Aniridia Association signs an agreement with OftaRed

In the frame of the signed agreement between the Spanish Association of Aniridia and Oftared http://www.oftared.com/, an innovative proposal was launched: those students of Nursing, Optics and Medicine Schools in Valladolid University (Spain) may apply for an annual University cooperation, according to which, they can get 3 credits of free choice in their University Curriculum. …

Clinical trial on KeraKlear Non-Penetrating Keratoprosthesis in Spain

A prospective, multicenter clinical trial designed to evaluate the safety and probable benefit of the keraklear non-penetrating keratoprosthesis in subjects with corneal opacity due to severe limbal stem cell deficiency associated with aniridia Summary: Sponsor and address KeraMed, Inc. 4122 East Chapman Avenue 2nd Floor, Suite 26 Orange, CA 92869Tel: 973-276-1414 Fax: 973-276-1882   Study …

Aniridie België – symposium 2018

Tijdstip: 24 februari 2018 van 9.30 u tot 13.20 u Locatie:  UZ Gent - bibliotheek Jules François - dienst oogziekten – UZ Gent Voor een routebeschrijving naar het UZ Gent: http://www.uzgent.be/nl/overuz/Bereikbaarheid/naar-de-campus/Paginas/default.aspx Programma: 9h30 – 9h40: Introductie (Aniridie België) [10 min] 9h40 – 10h40 : Prof. Dr. Leroy (UZ Gent Diensthoofd Oogheelkunde - oftalmogenetica) Genetische achtergrond/schetsing Aniridie + …

#iOmap: autonomy is nothing without control

Group picture of Aniridia Italy youth 2017
9th National Meeting of the Italian Aniridia Association Pisa (Italy), 26th-28th of May 2017 After the meeting in Milan in 2016, where we listened to many persons and understood their different needs, Aniridia Italiana has decided to organise a meeting for adolescents and young adults to deepen our knowledge about senses, personal autonomy and independent …

Aniridia Spain Research Awards

The Spanish Aniridia Association provides annual Awards to Aniridia Research in the frame of the Congress of the Spanish Ophthalmology Society. Here is the Record of Research Awards: 2005 AWARD FOR THE BEST POSTER ON CORNEA TREATMENT IN CONGENITAL ANIRIDIA “Therapeutic options in Congenital Aniridia” Dr. Fabiano Brandao, Barraquer Opthtahlmology Centre, was awarded by the …

Aniridia Spain signs an agreement with OftaRed

  In the frame of the signed agreement between the Spanish Association of Aniridia and OftaRed http://www.oftared.com/, an innovative proposal was launched: those students of Nursing, Optics and Medicine Schools in Valladolid University (Spain) may apply for an annual University cooperation, according to which, they can get 3 credits of free choice in their University …

8th national meeting of the Italian Aniridia association

“Accepting we learn” Meeting on independent living   8th national meeting of the Italian Aniridia association San Donato Milanese, Milan - Italy 18th – 20th November 2016 REPORT Outside the cold, misty weather typical of a late-November weekend in Milan provided the setting for a wonderful gathering. Indoors in the hotel lounge bar the welcome …

7th National Meeting of the Italian Aniridia association: Ten Years of Confrontation

The setting was Abano Terme (Padua) over the weekend of the 20-22 of November 2015. The atmosphere was one of continuous sharing, community and hope for the future. Families children and adults discussed, played and learnt together over a memorable eventful weekend. The conference started on Saturday with a round table entitled ‘Sport and Courage …