15 July 2023 | National activities, News & Events
The Annual Meeting On 22 April, Spanish families and young people living with aniridia met recently for the 2023 annual meeting. The event provided a supportive platform for sharing experiences and fostering connections within the aniridia community. Attendees...
15 July 2023 | National activities, News & Events
We have received a letter by Mikola Snurnikov, president of the Ukrainian aniridia association, describing the current situation in his country. It is very painful to read that aniridia patients cannot get regular examinations and access to care and that their life...
15 July 2023 | National activities, News & Events
Aniridia Bulgaria is pleased to share the attached file, which is a publication of the National Academy Glaucoma Foundation, Sofia, Bulgaria, 2023; the journal is “Bulgarian Glaucoma Forum”, 2023, Volume 12, Issue 1. Associate Professor Anna Popova...
15 July 2023 | National activities, News & Events
The Interregional Support center for patients with Aniridia “Iris” in the last half year has continued to support patients with aniridia providing them with free rehabilitation tools, glasses and sunglasses, as well as free examinations at the Center of Rare Eye...
2 September 2022 | National activities, News & Events
Founded 17 years ago, Gêniris is a well established patient organisation active in many healthcare and research institutions. The representative Marjorie Poeydomenge described its activities during the Aniridia Europe Community Meeting in Alicante, on the 3rd of June...
2 September 2022 | National activities, News & Events
The Spanish Aniridia association is the first ever founded association for aniridia patients and their families, and now, after 26 years, it continues in providing support to its members and in promoting knowledge and research about aniridia, as it has done in...
