Aniridia Europe

ANIRIDIA EUROPE announces the European Conference on Aniridia, to be held in Oslo, Norway, on June 8-10^th 2012.

The goal or the conference is to promote research on aniridia diagnosis and treatment.

The Norwegian Association of Aniridia – Aniridi Norge – is organising this European Conference on the rare disease, aniridia. The conference will take place in Oslo (Norway), on June 8-10^th 2012.

European and American experts will meet in the capital of Norway,  to share the latest findings in aniridia diagnosis and treatment. Aniridia is a congenital rare disease, causing low vision and many associated eye conditions and sporadic disorders in other organs of the body.

Promotion of research on this pathology is one of the key goals of this conference, as well as increasing and exchanging scientific knowledge on Aniridia, fostering the development of patient registries, European guidelines of good practice   and  designation of expert hospital or clinic units for aniridia.

The first two days, June 8^th and 9^th are addressed to doctors and researchers. The third, June 10^th, is addressed to patients and families. The program of June 10^th  will consist of a summary of the preceding medical agenda, in addition to topics concerning how to live with Aniridia.  During the Conference  an Eye Clinic will be held where patients  can get a second opinion on their condition  from expert doctors.

In order to encourage the attendance of health professionals  Aniridia Norway, has raised enough funds to subsidize and facilitate the participation of health professionals, especially young doctors

To coincide with the Conference, the Europe Membership General Assembly  will take place on June the 7^th, where many European Aniridia Associations and patients with families from different European countries will meet.

Parallel to the conference, there will be leisure and meeting activities for the international Aniridia community.

For further information, please, see:
www.aniridiaconference.org, for doctors
www.aniridiaconference.no, for patients

You can also contact:
Mr. Neven Milivojevic
Vice President Aniridia Europe.
E-mail: neven.milivojevic@aniridia.eu
Tel.+46706390068.

Aniridia Europe was formally established on September 25th 2011 and has its seat in Norway.
The European Federation of Aniridia Associations – Aniridia Europe – promotes research, exchange of knowledge on aniridia and empowers patients with aniridia throughout Europe. With the development of this Federation, we are removing barriers both physical and of knowledge, we are expanding our activity scope, creating links between European health professionals and patients, as well as raising awareness on our rare condition, says Rosa Sanchez Vega, the new President of Aniridia Europe.
 Aniridia Europe was founded by representatives of sixteen European countries whereof eight national aniridia associations from Norway, Sweden, France, United Kingdom, Italy, Spain, Germany and Finland. Further we have aniridia networks and contact persons in several other European countries and we vision in future aniridia associations throughout all Europe, says Neven Milivojevic Vice-President of the Federation.
 One of Aniridia Europe’s objectives is to have a scientific committee, in which different expert doctors and researchers on aniridia from each member country participate. This will facilitate the development of European research projects and European conferences on this rare condition. The First European Conference on aniridia is organized in Oslo, Norway 8-10th of June, 2012.

For more information, please contact: 
Ms. Rosa Sánchez de Vega
President
rosa.sanchez@aniridia.eu
Phone: +34 646718142

Neven Milivojevic  
Vice President
neven.milivojevic@aniridia.eu
Phone: +46 706390068

The Aniridia Europe website has been moved from aniridiaeurope.org to aniridia.eu. aniridia.eu will be the new official domain for Aniridia Europe.

Care has been taken to prevent invalid incoming links: All links to aniridiaeurope.org will be silently forwarded to the new domain for quite some time. Still, we urge webmasters on sites that links us to update the link.

If you notice a glitch or an invalid internal link on this site, please don’t hesitate to contact webmaster@aniridia.eu and tell us about it.