Organizers: Russian Aniridia Patient Support Society “Interregional Support center for patients with Aniridia “Iris”” Support is provided by: Russian Interregional Orphan Disease Society ( Medical Center «Childhood city” ( Target audience: Scientists and doctors working with aniridia, pediatric ophthalmologists, doctors, teachers and psychologists working in kindergartens and schools with visually impaired children, associations for blind

25th to 26th of October 2014, 52 persons where gathered at The Danish Blind Unions center, Fuglsangcentret, in Fredericia. 48 of this was Danish aniridia patients and their families. 3 came from Norway, 2 from Finland and 1 from Sweden. These were all board-representatives from their national aniridia organizations. Susanne Kjær Christensen, known from the

Dear friends, members and partners of Aniridia Europe. In a few days time we will pass into a new year with new opportunities and, of course, also challenges. Since its foundation in 2011 Aniridia Europe has in a surprising short time developed into a full-blown organisation. This development, again, is the result of the hard

From the “Note to readers” in the Italian guidelines: Guidelines permit the translation into clinical practice of knowledge from biomedical and sociomedical research. They represent the synthesis of systematic review of the scientific literature and expert opinion on the subject. As such, they provide a useful tool for physicians, researchers in clinical and basic science,