“Creation of Aniridia network of specialists strengthening of pathology expert base “
Hotel Saratoga
Paseo de Mallorca, 6. Palma de Mallorca
Tfno.: 0034 971 727242
Friday, 2 de may
Morning : Scientific meeting – National and European professionals only –
8.30 – 9.00 h – Receipt of documentation
9.00 – 9.15 h – Opening session, welcome message and objectives of the workshop. Spanish Aniridia Association.
9.15 – 10.00 h – Spanish Protocol on the management and care of Aniridia patients. Evaluate developing a European protocol on Aniridia.
- Dr. Álvarez de Toledo. Opthalmology Center Barraquer. Barcelona – España
- Dr. Pérez Santonja. Opthalmology Institute Vissum Alicante. – España
10.00 – 11.30h – Current situation in the diagnosis and care of Aniridia patients. Studies and projects in each country.
- Dr. Calvas : Service de génétique medicale. Hospital Purpan. Toulouse. France
- Dr. Grolla: School for Medicine Human Genetics. Salisbury. United Kingdom
- Dra. Edén: University Hospital. Lund. Sweden
- Dr. Dufier: Centre de Référence des maladies rares en ophtalmolgie. Paris. France
- Dra. Papadolus: Moorfields Eye Hospital. United Kingdon
- Dr. Rama: San Raffaele Hospital. Milan, Italia
- Dra. Tornquist: University Hospital. Lund. Sweden Dra.
- D’Elia: Istituto di Genetica. University hospital. Udine. Italy
- Dra. Vigano: San Raffaele Hospital. Milan, Italia
11.30 – 12.00h – Coffee break / Press conference.
Spanish Aniridia Association
12.00- 12.45h – Development of a European Research Proyect on Aniridia to submit to the European Commission. Steps forward.
Brainstorming.
12.45 – 13.30 h – Centres/Units of Reference for patients with Aniridia in each countries.
13.30 – 16.00 h – Group lunch
AFTERNON: GENERAL MEETING OF ANIRIDIA PATIENTS WITH SPECIALIST
– Open session –
16.00 – 16.15h – Round Table. Spanish Professionals
Presentation and Agreement on the “Protocol to be used with Aniridia patients“.
Dr. Alvarez de Toledo, Dr Pérez Santonja . Explanation of checks to be done the next day.
16.15 – 16.45h –Round table. European professionals
Brief explanation of the initiatives in each European country.
One representative per country.
16.45 – 17.15 h – Q & A session
17.15 – 17.45h – Roundtable. Comprehensive Rehabilitation through daily
activities ( AVD)
Integral rehabilitation programmes for blind or visually handicapped patients. Dña Concepción Blocona.
ONCE Technical Rehabilitation Specialist.
“How to improve Aniridia patient´s quality of life”.
D. Ángel Barañano Optical Opthometrist and specialist in Low
Vision.
17.45 – 18.15h – Q & A
18.15 – 1845h – Patient associations: promoting research.
Aniridia associations in different countries.
- Spain:
Rosa Sánchez de Vega
Yolanda Asenjo - France
Gaelle J.
Gaelle Lancelin
Ines de Leudeville - Italy
Barbara Poli
Corrado Teofili - Norway
Hansen Hilde
Arvid Melo
18.45 – 19.00h – Q & A
DAY`S CLOSURE / CELLO PIECE BY ALEJANDRO YÉBENES
SATURDAY, 3 May
09.00 hrs
Opthalmologic checks and simple taking by Spanish opthalmologists of the Protocol Book
Hospital Instituto Balear Oftalmológico (IBO), C/ Camino de la Vileta, Palma de Mallorca.