When you are dealing with a rare disease such as aniridia, there is a lot of information that you come across in a short time, and it is really difficult to understand what are the most important things that you need to know and to do, and in which priority order.
This is why a quick reference memo on the condition can be very helpful.
This is the objective of the brochures developed and published on aniridia by the Russian Inter-regional Support Centre for Patients with Aniridia and on WAGR syndrome, published by the same Russian association together with IWSA International Wagr Syndrome Association.
You can download them here:
They are in Russian language, but automatic translation can help you in understanding the key topics in your language.