We are pleased to report some very important news from IWSA website:

The article “Results from the WAGR Syndrome Patient Registry: Characterization of WAGR Spectrum and Recommendations for Care Management”, published in Frontiers in Pediatrics, is the result of a multi-year project conducted by the Kalish Laboratory at Children’s Hospital of Philadelphia Research Institute in collaboration with the IWSA Research and Medical Advocacy Team.
This research highlights new information, recommends changing the name of the disorder, and presents evidence-based, comprehensive guidelines for medical care.
Full information at: https://wagr.org/RegistryResults