We are pleased to report some very important news about WAGR.
From France: in October 2021, the first national guidelines in France and in Europe on Wagr spectrum developed by GÉNIRIS and the OPHTARA aniridia reference center of the Necker-Enfants Malades hospital, in Paris in France were published here (French language).
From USA: the article “Results from the WAGR Syndrome Patient Registry: Characterization of WAGR Spectrum and Recommendations for Care Management”, published in Frontiers in Pediatrics, December 2021, is the result of a multi-year project conducted by the Kalish Laboratory at Children’s Hospital of Philadelphia Research Institute in collaboration with the IWSA Research and Medical Advocacy Team.
This research highlights new information, recommends changing the name of the disorder, and presents evidence-based, comprehensive guidelines for medical care.
Full information at: https://wagr.org/RegistryResults