Tag Archives: rare diseases

A message from Prof. Barbara Käsmann-Kellner, chair of Aniridia Europe’s Scientific Committee This year the Rare Disease Day focuses on research and its slogan is: ‘With research, possibilities are limitless‘ (see http://www.rarediseaseday.org). This is a very positive slogan indeed, and with Aniridia, we sure have seen developments within the last few years which would have

ANIRIDIA EUROPE DAYJune 7th 2012Norges BlindeforbundBraille RoomSporveisgata 10Oslo, Norway 13.00 h. Round Table: Next steps to develop an Aniridia Patients’ Registry in Europe Retinitis pigmentosa patients ́registries. Mr. Ole Christian Lagesen. Journalist European policy on Rare Diseases. Ms. Rosa Sánchez de Vega. President of Aniridia Europe. EURORDIS board member. The state of the art in