11 August 2016 | AE
This is the final agenda and documents for the General Assembly, August 26th, 2016 in Duisburg, Germany. Each member should print the documents or save them in an electronic device of her/his own.
20 July 2016 | AE, News & Events
General Assembly will take place on August 26th, 2016, 17.00 – 18.00, Wyndham Duisburger Hof Hotel Opernplatz 2 47051 Duisburg Germany https://www.wyndhamduisburg.com/en Full members of the association are welcome to submit formal proposals to the agenda for the...
10 February 2016 | National activities
The setting was Abano Terme (Padua) over the weekend of the 20-22 of November 2015. The atmosphere was one of continuous sharing, community and hope for the future. Families children and adults discussed, played and learnt together over a memorable eventful weekend....
30 September 2015 | National activities
One vision! Youth in Europe with Aniridia Summer camp in Bussolengo (Verona, Italy), 3rd to 15th August 2015 Report Participants Germany: 7 people Italy: 15 persons Norway: 17 people Spain: 10 people United Kingdom: 9 people Participants’ organisation...
8 May 2015 | National activities
Organizers: Russian Aniridia Patient Support Society “Interregional Support center for patients with Aniridia “Iris”” Support is provided by: Russian Interregional Orphan Disease Society (www.spiporz.ru) Medical Center «Childhood city”...