#iOmap: autonomy is nothing without control

Group picture of Aniridia Italy youth 2017
9th National Meeting of the Italian Aniridia Association Pisa (Italy), 26th-28th of May 2017 After the meeting in Milan in 2016, where we listened to many persons and understood their different needs, Aniridia Italiana has decided to organise a meeting for adolescents and young adults to deepen our knowledge about senses, personal autonomy and independent …

8th national meeting of the Italian Aniridia association

“Accepting we learn” Meeting on independent living   8th national meeting of the Italian Aniridia association San Donato Milanese, Milan - Italy 18th – 20th November 2016 REPORT Outside the cold, misty weather typical of a late-November weekend in Milan provided the setting for a wonderful gathering. Indoors in the hotel lounge bar the welcome …

7th National Meeting of the Italian Aniridia association: Ten Years of Confrontation

The setting was Abano Terme (Padua) over the weekend of the 20-22 of November 2015. The atmosphere was one of continuous sharing, community and hope for the future. Families children and adults discussed, played and learnt together over a memorable eventful weekend. The conference started on Saturday with a round table entitled ‘Sport and Courage …

One vision! Summer camp 2015 – Video and Report

    One vision! Youth in Europe with Aniridia Summer camp in Bussolengo (Verona, Italy), 3rd to 15th August 2015 Report Participants Germany: 7 people Italy: 15 persons Norway: 17 people Spain: 10 people United Kingdom: 9 people Participants’ organisation during the camp Each of the four adults was appointed a specific task: Trude was …

Aniridia Summer 2015 – Invitation to youth camp in Italy

To youth in the age of 15-25 with aniridia, living in Norway, Spain, United Kingdom, Germany, and Italy: You are hereby invited to a group exchange in Italy, 4th to 14th of August 2015. Topics are Meaningful Leisure & European corporations. You are now offered an unique opportunity to experience Italy, get to know other …

Minutes from the General Assembly, September 21st, 2014

General Assembly, September 21st, 2014, 09.00 - 12.00 CET, Venice, Italy MINUTES     Opening of the meeting The meeting was opened at 9.20. Approval of the agenda Agenda was approved. Election of the chairman of the meeting Neven Milivojevic was elected chairman of the meeting. Election of the secretary of the meeting Barbara Poli …

Invitation to the 2nd European Conference on Aniridia & General Assembly, 2014

Aniridia Europe, Aniridia Italiana and Fondazione Banca degli Occhi del Veneto are pleased to announce the upcoming 2nd European Conference on Aniridia, which will be held on 19th-20th September 2014 in Venice (Italy). Information about the conference, programme, faculty list and venue is available on www.aniridiaconference.org. During the same weekend, Aniridia Europe is planning to …

6th National Meeting of the Italian Aniridia association

The Italian Aniridia association is going to have its 6th National Meeting in Rome from the 22nd to the 24th of November 2013. The programme includes: the General Assembly, a presentation of the recently published Italian Guidelines on Clinical Management of Aniridia, a seminar on social inclusion and visual aids and a meeting for families, …

Report on Aniridia Europe Board and Scientific Committee joint meeting

Aniridia Europe Science comitee and Board of Directors, in front on the Veneto Eye Bank in Maestre, Italy
Mestre (Venice), Italy, November 18th, 2012 Aniridia Europe Board of Directors and Scientific Committee met at the Veneto Eye Bank Foundation in Mestre, Venice, on November 18th, 2012. This Scientific Committee, currently composed by five doctors representing five different European countries, has the mission of giving advice to Aniridia Europe Board, fostering research on aniridia …

Italian Aniridia Association – 5th national congress

Padua, 25th-27th of November 2011 - Aniridia Italiana, the Italian Aniridia Association, organized its 5th  national congress from 25th to 27th of November 2011 in Padua (Veneto Region). More than sixty people - patients, parents and relatives - attended the congress and the agenda of the meeting was characterised by the presence of many qualified …