20 April 2021 | AE, News & Events
Since Covid-19 spread out at global level, governments and institutions have set social distancing measures in order to contain the sanitary emergency. Starting from that moment a lot of patients around the world have lost the opportunity to meet face-to-face and to...
27 February 2021 | AE, News & Events
For the Rare Disease Week 2021 Aniridia Europe organized the webinar “News from the frontier” about the Aniridia-Net COST Action and the latest news about aniridia treatment and research. The webinar started with a welcome speech by Ivana Kildsgaard, chairperson of...
23 February 2021 | AE, News & Events
For the Rare Disease Week this year we have organised a webinar about the Aniridia-Net COST Action and the latest news in aniridia treatment and research. Our keynote speakers are dr. Neil Lagali (University of Linköping, Sweden) and dr. Claus Cursiefen (University of...
22 January 2021 | AE, National activities, News & Events
The next European Aniridia Conference will be held online and perhaps in London too, 30 July to 1 August 2021. Make a note in your calendar now and pass this invitation on to anyone who might be interested The event is aimed at professionals, patients and parents. As...
22 January 2021 | AE, News & Events
Please download it here.
13 January 2021 | AE, News & Events
The COST Action Aniridia-Net comprises activities of advocacy and visibility, in order to create awareness about aniridia. One of these activities is the creation of a beautiful and touching 2021 calendar with the drawings created by aniridia children from all over...