#iOmap: autonomy is nothing without control

Group picture of Aniridia Italy youth 2017
9th National Meeting of the Italian Aniridia Association Pisa (Italy), 26th-28th of May 2017 After the meeting in Milan in 2016, where we listened to many persons and understood their different needs, Aniridia Italiana has decided to organise a meeting for adolescents and young adults to deepen our knowledge about senses, personal autonomy and independent …

8th national meeting of the Italian Aniridia association

“Accepting we learn” Meeting on independent living   8th national meeting of the Italian Aniridia association San Donato Milanese, Milan - Italy 18th – 20th November 2016 REPORT Outside the cold, misty weather typical of a late-November weekend in Milan provided the setting for a wonderful gathering. Indoors in the hotel lounge bar the welcome …

Minutes from the General Assembly, August 26th, 2016

Agenda General Assembly August 26th, 2016, 17.00 - 18.00 Duisburg, Germany       Opening of the meeting The meeting was opened at 17.00. Approval of the agenda The agenda was approved. Election of the chairperson of the meeting Ognian Petkov was elected chairperson of the meeting. Election of the secretary of the meeting Anita …

Agenda and documents for General Assembly, August 26th, 2016

This is the final agenda for the General Assembly, August 26th, 2016 in Duisburg, Germany. Agenda for the General Assembly Aniridia Europe 2016 Documents: Board comments and recommendations on AE statutes proposal for revision Financial statement AE Activity Report for 2014 -2016 As we will not hand out paper-copies of the documents at the General …

7th National Meeting of the Italian Aniridia association: Ten Years of Confrontation

The setting was Abano Terme (Padua) over the weekend of the 20-22 of November 2015. The atmosphere was one of continuous sharing, community and hope for the future. Families children and adults discussed, played and learnt together over a memorable eventful weekend. The conference started on Saturday with a round table entitled ‘Sport and Courage …

Report on Nordic Aniridia Meeting 2014 in Denmark

25th to 26th of October 2014, 52 persons where gathered at The Danish Blind Unions center, Fuglsangcentret, in Fredericia. 48 of this was Danish aniridia patients and their families. 3 came from Norway, 2 from Finland and 1 from Sweden. These were all board-representatives from their national aniridia organizations. Susanne Kjær Christensen, known from the …

6th National Meeting of the Italian Aniridia association

The Italian Aniridia association is going to have its 6th National Meeting in Rome from the 22nd to the 24th of November 2013. The programme includes: the General Assembly, a presentation of the recently published Italian Guidelines on Clinical Management of Aniridia, a seminar on social inclusion and visual aids and a meeting for families, …

AE meeting Homburg, June 1-2,2013

Aniridia Europe Meeting Universitätsklinikum des Saarlandes Klinik für Augenheilkunde Homburg/Saar (Germany) 1st and 2nd of June 2013 Report This event was jointly organised by the Eye Hospital for Ophthalmology of the University Hospital Saarland, Homburg /Saar, the German Aniridia Association, AWS Aniridie-WAGR Selbsthilfe e.V. and The European Federation of Aniridia Associations, Aniridia Europe, with the …

AE – Aniridia Europe Round Table and General Assembly, June 6, 2012

ANIRIDIA EUROPE DAYJune 7th 2012Norges BlindeforbundBraille RoomSporveisgata 10Oslo, Norway 13.00 h. Round Table: Next steps to develop an Aniridia Patients' Registry in Europe Retinitis pigmentosa patients ́registries. Mr. Ole Christian Lagesen. Journalist European policy on Rare Diseases. Ms. Rosa Sánchez de Vega. President of Aniridia Europe. EURORDIS board member. The state of the art in …

Invitation and call for grants for our Community meeting in Germany June 1-2nd 2013

View of the market in the old town of Homburg, Saarland
WE ARE BUILDING A STRONG COMMUNITY Let me tell you that we now are able to give you more details about our next COMMUNITY MEETING, to be held on June 1-2nd 2013 in Homburg/Saarbrücken (Germany), a meeting for aniridia representatives and contact people in the different European countries. Join us at our major event this …