News
Aniridia-Net meeting, Paris 12th-13th September 2019
After the kick-off meeting held in Brussels (Belgium) in Spring 2019, a new meeting of the COST Action Aniridia-Net project took place in Paris in September. The 6 working groups’ leaders explained the goals and actions to be taken and assigned the tasks for the...
Erasmus+ project Looking out for a school for all. 2nd transnational meeting, Sandefjord (Norway) 14th September 2019
The project is focused on early educational inclusion for visually impaired children. It involves 6 partners from 3 different European countries: RedTree, a Spanish organisation that has a long experience in working with associations of people with visual impairment,...
Join us in the next international Aniridia Day on 21 June 2019!
The international Aniridia Day is a great opportunity to raise awareness on our rare condition, to share information and experiences, and to improve social inclusion and quality of life for people with aniridia. Learn more at the website and join the Aniridia Day...
Aniridia Network Conference, 1 June 2019 in Birmingham, UK
The next big event in the UK will be a chance to hear from, and ask questions to people interested in and affected by aniridia. There will be presentations about aniridia and related subjects from doctors and patients as well as the charity's annual general meeting....
Nordic aniridia conference, 7-9 June 2019 in Hurdal near Oslo, Norway
On 7 to 9 June 2019 a Nordic meeting for aniridia patients and experts will be held in Hurdal near Oslo, Norway. The meeting is a result of a collaboration between Aniridia associations in Sweden, Norway and Denmark as well as Linköpings University Hospital in Sweden....
French guidelines for congenital aniridia published, April 2019
The French National Protocol of diagnosis and care of aniridia (PNDS - protocole national de diagnostic et de soins) is now available at: https://www.has-sante.fr/portail/jcms/c_2963463/fr/aniridieIt has been developed by OPHTARA - Centre of Reference for Rare Eye...
Aniridia Centre opened in Moscow, Russia, February 2019
A centre of expertise is now available for aniridia patients in Moscow, Russia, at the National Medical Research Center for Children's Health (an autonomous institution of the Ministry of Health of the Russian Federation). In this centre, patients with aniridia, both...
Symposium on rare eye diseases and on aniridia, Venice (Italy), February 21th, 2019
A symposium focused on the rare diseases of the ocular surface and on aniridia in particular was held in Mestre (Venice), in the framework of the 23rd National Congress of the Italian Society of Cornea Transplant and Ocular Surface (S.I.T.R.A.C.). The symposium is...
Aniridia Europe is a partner in two European projects
Erasmus+ project Looking out for a school for all: early educational inclusion for students with low vision The project is focused on early educational inclusion for visually impaired children. It involves 6 partners from 3 different European countries. It is led by...
GENIRIS and AFM TELETHON support research on aniridia
In 2018 and 2019, GENIRIS and AFM TELETHON have decided to support with 85 000 euros Pr Aberdam project on aniridia «MODELING OF HUMAN ANIRIDIA AND GENE THERAPY APPROACHES ». His group has designed an unique cellular model that recapitulates in vitro ARK. By the use...