News
Aniridia Europe and Aniridia-Net working together to promote knowledge on Aniridia and collaboration among scientists and with patients
Aniridia Europe is glad to announce a great new partnership with Aniridia-Net in order to promote knowledge on Aniridia and updates on its treatments. Starting from May 26th at 6:00 PM CEST, in fact, Aniridia Europe and Aniridia-net will implement a series of monthly...
Report on the webinar “Digital rebels against distance”
In Italy, a group of young adults with aniridia decided to do something more for their friends. In June 2020 they built a team composed by 4 young ladies and 2 young men who began to publish posts on social networks, creating funny digital events, promoting and...
Webinar: Digital rebels against distance, Saturday 24th April 2021, 11.00 a.m. CEST
Since Covid-19 spread out at global level, governments and institutions have set social distancing measures in order to contain the sanitary emergency. Starting from that moment a lot of patients around the world have lost the opportunity to meet face-to-face and to...
Report on the webinar “News from the frontier”, 27th February 2021
For the Rare Disease Week 2021 Aniridia Europe organized the webinar “News from the frontier” about the Aniridia-Net COST Action and the latest news about aniridia treatment and research. The webinar started with a welcome speech by Ivana Kildsgaard, chairperson of...
News from the frontier: a dialogue on Aniridia-Net COST Action to improve aniridia clinical management and promote innovative research, Saturday 27th February 2021, 11 a.m. CET
For the Rare Disease Week this year we have organised a webinar about the Aniridia-Net COST Action and the latest news in aniridia treatment and research. Our keynote speakers are dr. Neil Lagali (University of Linköping, Sweden) and dr. Claus Cursiefen (University of...
5th European Aniridia Conference 2021 – Info and call for ideas
The next European Aniridia Conference will be held online and perhaps in London too, 30 July to 1 August 2021. Make a note in your calendar now and pass this invitation on to anyone who might be interested The event is aimed at professionals, patients and parents. As...
Aniridia Europe’s newsletter Jan 2021 published!
Please download it here.
Aniridia 2021 calendar available for download!
The COST Action Aniridia-Net comprises activities of advocacy and visibility, in order to create awareness about aniridia. One of these activities is the creation of a beautiful and touching 2021 calendar with the drawings created by aniridia children from all over...
Gene.Vision website about aniridia launched in UK
Medical information about aniridia, written for both patients and doctors, is now available on a new website by Moorfields Eye Hospital.
Gene.Vision contains in-depth, but easy to read, details about aniridia for patients and their families. It also lists current research and clinical trials in to treatments.
The brochure “Congenital Aniridia and Related Syndromes” published in Russia
The Russian Aniridia Centre has developed and published the brochure Congenital aniridia and related syndromes. Treatment and prevention. It includes data from geneticists, ophthalmologists, neurologists, neuro-psychologists, endocrinologists, nephrologists, vaccine specialists, special needs therapists about this condition, as well as recommendations about the treatment and prevention of aniridia associated disorders.