One vision! Summer camp 2015 – Video and Report

    One vision! Youth in Europe with Aniridia Summer camp in Bussolengo (Verona, Italy), 3rd to 15th August 2015 Report Participants Germany: 7 people Italy: 15 persons Norway: 17 people Spain: 10 people United Kingdom: 9 people Participants’ organisation during the camp Each of the four adults was appointed a specific task: Trude was …

Aniridia Summer 2015 – Invitation to youth camp in Italy

To youth in the age of 15-25 with aniridia, living in Norway, Spain, United Kingdom, Germany, and Italy: You are hereby invited to a group exchange in Italy, 4th to 14th of August 2015. Topics are Meaningful Leisure & European corporations. You are now offered an unique opportunity to experience Italy, get to know other …

AE – Aniridia Europe Round Table and General Assembly, June 6, 2012

ANIRIDIA EUROPE DAYJune 7th 2012Norges BlindeforbundBraille RoomSporveisgata 10Oslo, Norway 13.00 h. Round Table: Next steps to develop an Aniridia Patients' Registry in Europe Retinitis pigmentosa patients ́registries. Mr. Ole Christian Lagesen. Journalist European policy on Rare Diseases. Ms. Rosa Sánchez de Vega. President of Aniridia Europe. EURORDIS board member. The state of the art in …

European Conference on Aniridia – June 8-10th 2012

ANIRIDIA EUROPE announces the European Conference on Aniridia, to be held in Oslo, Norway, on June 8-10th 2012. The goal or the conference is to promote research on aniridia diagnosis and treatment. The Norwegian Association of Aniridia - Aniridi Norge - is organising this European Conference on the rare disease, aniridia. The conference will take …

Norwegian handbook “Living with Aniridia” released

The Norwegian Association of Aniridia, Aniridi Norge, has released a handbook on aniridia; "Living with Aniridia". The handbook received funding from the Norwegian Government, and is written by Aniridi Norge in collaboration with the Norwegian Centre for Rare Disorders. Both users and professionals have contributed with content, which focus on the practical aspect of living …

26-27 March 2011 Nordic Conference on Aniridia in Stockholm, Sweden

A historic day for the Aniridia community in Sweden where about 50 persons from Sweden, Norway and Finland will gather in the Swedish capital to discuss matters of research within the field, developing the community work, strenghtening the Aniridia networks as well as holding the Annual General Assembly of the Swedish Aniridia Network. Never before …