News
Italian research with non-clinical organ, tissue and cells has been put on hold
We have received a press release from the Fondazione Banca degli Occhi del Veneto. ITALIAN RESEARCH WITH NON-CLINICAL ORGAN, TISSUE AND CELLS HAS BEEN PUT ON HOLD by Stefano Ferrari, PhD and Diego Ponzin, MD Fondazione Banca degli Occhi del Veneto, Venice, Italy...
Aniridia-Net 2022 calendar is now available!
Working together to build a brighter future for aniridia patients. This is the key message Aniridia Europe and Aniridia-Net want to convey through this calendar, that will accompany you during the year 2022. The aim is to create awareness on the condition and...
ANA Scientific Symposium: PAX6, aniridia, and beyond. November 6-7, 2021 – University of Virginia (USA)
The newly formed Aniridia North America (ANA) announces its first event to strengthen and expand research focused on aniridia and related problems. The 2021 Aniridia North America Symposium: PAX6, Aniridia, and Beyond will bring together top researchers from North...
Aniridia North America (ANA), an umbrella organization for aniridia stakeholders and international collaboration
Aniridia Europe is very happy to welcome and congratulate Aniridia North America (ANA), a US-based nonprofit organization, recently created with the mission “to represent, serve, and support the North American community of persons affected by aniridia and their...
Webinar: A fresh look to aniridia pathophysiology with a focus on translational implications, Friday 22nd October 2021, 18.00 CET
Aniridia-Net and Aniridia Europe are happy to announce this new webinar on aniridia, recommended to an audience of professionals working in the field. The speakers, Dr. Juan Álvarez de Toledo (Centro de Oftalmología Barraquer, Barcelona, Spain) and Dr. Paolo Rama...
Aniridia as a rare condition and its effect on psychological health
On 1st August 2021, in the framework of the 5th European Aniridia Conference, Dr. Galina Gening* presented the results of a study on the impact of aniridia and WAGR syndrome on the psychological states of patients and their families. In the last decades aniridia and...
The 5th European Aniridia Conference has been a great success! Recordings available
The 5th European Aniridia Conference this year had to face many challenges, that included the postponing from 2020 to 2021 and the complete transformation in an online event. In spite of all this, the conference displayed over the two days (31st July and 1st August...
Aniridia and WAGR patient brochures published in Russia
When you are dealing with a rare disease such as aniridia, there is a lot of information that you come across in a short time, and it is really difficult to understand what are the most important things that you need to know and to do, and in which priority order....
News from Aniridia Europe, July 2021
The first half of 2021 has been a very intense period for Aniridia Europe, full of worldwide contacts and exchanges and of activities. Our collaboration inside the Aniridia-Net COST Action allowed us to plan a series of scientific webinars that started in February,...
Young volunteers grow up in Aniridia Network (UK & Ireland)
Volunteers are the heart of an association (visit our page on this), and this is especially important when they are young because they can help their peers not to feel alone and to be hopeful, confident, supported and well informed. Young Aniridic Aaron has helped us...